ArticleJournal of clinical medicine2020
Assessment of the Psychological Situation in Adults with Congenital Heart Disease.
Article in Journal of clinical medicine, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 3 of them syntheses that pooled it.
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Who cites it
17 citing papers in PubMed, 3 syntheses or guidelines pooled it, 36 citations in OpenAlex.
- Measures of identity in adolescents/young adults with long-term physical health conditions: a systematic review.Journal of pediatric psychology · 2026Pooled it
- A Systematic Review of Relationships Between Illness Identity and Health-Related Outcomes in Individuals with Chronic Illnesses.Journal of clinical psychology in medical settings · 2024Pooled it
- Psychological interventions for depression in adolescent and adult congenital heart disease.The Cochrane database of systematic reviews · 2023Pooled it
- Digital Emotion Regulation Interventions for Patients With Congenital Heart Disease: A Randomized Clinical Trial.JAMA network open · 2025Trial
- Investigation of Community Integration in Adults with Congenital Heart Disease Within the Scope of International Classification of Functioning, Disability, and Health.Pediatric cardiology · 2026Article
- How Emotion Regulation and Illness Identity Shape Mental Health in Adults with Congenital Heart Disease.Medical sciences (Basel, Switzerland) · 2025Article
- Post-traumatic Distress in Adults with Congenital Heart Disease: Protective Factors and Clinical Implications.International journal of behavioral medicine · 2025Article
- Mental Health Treatment in Adults with Congenital Heart Disease in Germany: An Online, Cross-Sectional Study of Status, Needs, and Treatment Reasons.Journal of cardiovascular development and disease · 2025Article
- Body image of men and women with congenital heart disease over a 15 years observational period.Scientific reports · 2025Article
- Effects of meditation on health promoting protective factors of persons with cardiovascular disease-a quasi-experimental pilot study with pre-post comparison.Cardiovascular diagnosis and therapy · 2024Article
- Definitions of resilience and resilience resource use as described by adults with congenital heart disease.International journal of cardiology. Congenital heart disease · 2023Article
- Quality of life in patients with Fabry's disease: a cross-sectional study of 86 adults.Cardiovascular diagnosis and therapy · 2022Article
- Psychosocial well-being in postpartum women with congenital heart disease.Cardiovascular diagnosis and therapy · 2022Article
- Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries.Journal of the American Heart Association · 2022Observational
- Article
- Systematic assessment of health care perception in adults with congenital heart disease in Germany.Cardiovascular diagnosis and therapy · 2021Article
- Facts about the General Medical Care of Adults with Congenital Heart Defects: Experience of a Tertiary Care Center.Journal of clinical medicine · 2020Article
Corrections and comments
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Authors and funding
8 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDue to advances in the diagnosis and treatment of congenital heart disease (CHD), the number of adults who are surviving with congenital heart disease (ACHD) is constantly growing. Until recently, the psychological effects of CHD had been widely neglected. Current research provides evidence for an increased risk of emotional distress in ACHD. The concept of illness identity attempts to explain how patients experience and integrate their CHD into their identities. The present study investigated illness identity in relation to clinical parameters and psychological functioning. Psychometric properties of the German version of the Illness Identity Questionnaire (IIQD) were examined.
methodsSelf-reported measures on illness identity and psychological functioning (HADS-D) were assessed in a representative sample of 229 ACHD (38 ± 12.5 (18-73) years; 45% female) at the German Heart Center Munich. Descriptive analyses and multiple regression models were conducted. Confirmatory factor analysis was performed to validate the IIQD.
resultsThe IIQD demonstrated good reliability. The originally-postulated four-factor structure could not be replicated. Anatomic disease complexity and functional status significantly influenced illness identity. Illness identity accounted for unique variances in depression and anxiety: Maladaptive illness identity states (i.e., , engulfment and rejection) were associated with higher emotional distress, whereas adaptive illness (i.e., , acceptance and enrichment) identity states were linked to lower emotional distress.
conclusionsIllness Identity emerged as a predictor of emotional distress in ACHD. Findings raise the possibility that interventions designed to target a patient's illness identity may improve psychological well-being and cardiac outcomes in ACHD.
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