ArticleApplied ergonomics2020
Conceptualizing caregiving activities for persons with dementia (PwD) through a patient work lens.
Article in Applied ergonomics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
19 citing papers in PubMed, 36 citations in OpenAlex.
- A work systems approach to characterizing emergency department disposition decision-making under low and high demand.Applied ergonomics · 2026Article
- Managing medications together: a qualitative study of collaboration between primary and secondary caregivers of older adults.BMC geriatrics · 2026Article
- Conceptualizations of compassion in the context of dementia caregiving: A scoping review protocol.PloS one · 2026Article
- Leveraging Ergonomics and Human Factors (E/HF) for community impact: what have we learned about how to make a difference.Ergonomics · 2025Article
- Macroergonomic components of the patient work system shaping dyadic care management during adolescence: a case study of type 1 diabetes.Ergonomics · 2024Article
- Effectiveness of a Mobile App (Meds@HOME) to Improve Medication Safety for Children With Medical Complexity: Protocol for a Randomized Controlled Trial.JMIR research protocols · 2024Article
- Designing for caregiving networks: a case study of primary caregivers of children with medical complexity.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Exploring the Lived Experiences of Caregiving for Older Family Members by Young Caregivers in Singapore: Transition, Trials, and Tribulations.International journal of environmental research and public health · 2024Article
- Unpaid caregivers' process of collaborating with others during older adult hospital-to-home transitions: A grounded theory study.PloS one · 2024Article
- What makes a home? Designing home personas to represent the homes of families caring for children with medical complexity.Applied ergonomics · 2023Article
- A human factors and ergonomics approach to conceptualizing care work among caregivers of people with dementia.Applied ergonomics · 2022Article
- Quantifying the qualitative: exploring epistemic network analysis as a method to study work system interactions.Ergonomics · 2022Article
- Interprofessional collaboration in palliative dementia care through the eyes of informal caregivers.Dementia (London, England) · 2022Article
- Exploring how caregivers for people living with dementia use strategies to overcome work system constraints.Applied ergonomics · 2022Article
- Quality of Mobile Apps for Care Partners of People With Alzheimer Disease and Related Dementias: Mobile App Rating Scale Evaluation.JMIR mHealth and uHealth · 2022Article
- Medical Device Workarounds in Providing Care for Children With Medical Complexity in the Home.Pediatrics · 2021Article
- Diverse perspectives on hospitalisation events among people with dementia: protocol for a multisite qualitative study.BMJ open · 2021Article
- A process-based approach to exploring the information behavior of informal caregivers of people living with dementia.International journal of medical informatics · 2021Article
- Exploring dementia family caregivers' everyday use and appraisal of technological supports.Geriatric nursing (New York, N.Y.)Article
Corrections and comments
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
Informal caregivers are an integral part of care delivery for persons with dementia (PwD). Informal caregivers take part in a wide range of care activities both individually and collaboratively with other caregivers. Caregiving often involves high demands in the face of limited resources, which can lead to stress, burden, and burnout. To support caregivers, we need to conceptualize caregiving activities they perform, and the networks and roles through which they perform work. We performed a directed content analysis on interview data from twenty caregivers and applied a human factors approach to characterize informal caregiving work. Our results revealed 1) nuances in caregiving roles, 2) differences in caregiving networks, and 3) 13 categories of caregiving activities characterized by time commitments; physical, cognitive and socio-behavioral demands; and varying network dependencies. These findings can be applied in future studies to evaluate the needs of caregiving networks and how to better support them.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.