Evidence map›Paper›PMID 32169922›Full record

ArticleBMJ open2020

What hinders congenital ectopia lentis patients' follow-up visits? A qualitative study.

Jianqiang Lin, Ni Gong, Qianzhong Cao, Yijing Zhou, Yitingxue Cai, Guangming Jin, Charlotte Aimee Young, Jing Yang, Yiyao Wang, Danying Zheng

2 registry-linked trialsAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05628129 naactive not recruitingnot on this mapstarted 2022, after this paper: background citation

Effect of WeChat Application Combined Phone Reminder on Follow-up Adherence Improvement in Congenital Ectopia Lentis Patients : A Randomized Controlled Trial

TypeinterventionalSponsorZhongshan Ophthalmic Center, Sun Yat-sen UniversityRan2022 to 2027Enrolled110ConditionsEctopia LentisArmssmartphone application service and phone reminder
NCT05654025 recruitingnot on this mapstarted 2022, after this paper: background citation

Follow up Study on Visual Prognosis and Complications of Ectopia Lentis Lens

TypeobservationalSponsorZhongshan Ophthalmic Center, Sun Yat-sen UniversityRan2022 to 2027Enrolled604ConditionsEctopia Lentis, Dislocation, Lens
3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Jianqiang Lin *State Key Laboratory of Ophthalmology, Zhongshan Ophthalmic Center, Sun Yat-Sen University, Guangzhou, Guangdong, China.ORCID 0000-0001-5651-1932
Ni Gong *School of Nursing, Sun Yat-Sen University, Guangzhou, China.
Qianzhong CaoState Key Laboratory of Ophthalmology, Zhongshan Ophthalmic Center, Sun Yat-Sen University, Guangzhou, Guangdong, China.
Yijing ZhouState Key Laboratory of Ophthalmology, Zhongshan Ophthalmic Center, Sun Yat-Sen University, Guangzhou, Guangdong, China.
Yitingxue CaiSchool of Sociology and Anthropology, Sun Yat-Sen University, Guangzhou, Guangdong, China.
Guangming JinState Key Laboratory of Ophthalmology, Zhongshan Ophthalmic Center, Sun Yat-Sen University, Guangzhou, Guangdong, China.
Charlotte Aimee YoungDepartment of Ophthalmology, University of California, San Francisco, California, USA.
Jing YangState Key Laboratory of Ophthalmology, Zhongshan Ophthalmic Center, Sun Yat-Sen University, Guangzhou, Guangdong, China.
Yiyao WangState Key Laboratory of Ophthalmology, Zhongshan Ophthalmic Center, Sun Yat-Sen University, Guangzhou, Guangdong, China.
Danying ZhengState Key Laboratory of Ophthalmology, Zhongshan Ophthalmic Center, Sun Yat-Sen University, Guangzhou, Guangdong, China zhengdyy@163.com.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesThe aim of our study is to give insight into congenital ectopia lentis (CEL) patients' care-seeking behaviour and explore the factors affecting their follow-up visits.

designCross-sectional study; in-depth and face-to-face semistructured interview.

settingA large-scale ophthalmology hospital in China.

participants35 patients with CEL and their parents from May 2017 to August 2017.

main outcome measuresThemes and categories. The interviews were audio-recorded, transcribed verbatim, coded and analysed using grounded theory. Data collection was closed when new themes did not emerge in subsequent dialogues.

resultsThe factors affecting the timely visits included insufficient awareness of CEL, shame on hereditary disease, lack of effective doctor-patient communication, lack of reliable information online and daily stressors.

conclusionContinuing medical education of severe and rare disease, reforming the pattern of medical education, constructing an interactive platform of the disease on the internet and improving healthcare policy are effective ways to improve the diagnosis and treatment status of CEL in China.

Indexed as

Health Knowledge, Attitudes, PracticeHealth Services AccessibilityAdolescentAdultAftercareChildChild, PreschoolChinaCross-Sectional StudiesEctopia LentisFemaleHumansInterviews as TopicMalePatient Acceptance of Health CarePhysician-Patient Relationscongenital heart diseasehealth policymedical education & trainingpaediatric ophthalmologyqualitative research

Identifiers

PMID32169922
PMCPMC7069255

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.