ArticleJournal of the American Geriatrics Society2020
Caregiver Needs Assessment in Primary Care: Views of Clinicians, Staff, Patients, and Caregivers.
Article in Journal of the American Geriatrics Society, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 43 papers.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
43 citing papers in PubMed.
- A Pilot Trial Evaluating Collaborative Healthcare Encounters With Caregivers: A Checklist-Based Intervention for Primary Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Trial
- Caregiver Communication and Preparedness During Transitions in Care: Results from a Randomized Controlled Trial.Journal of palliative medicine · 2025Trial
- Examining Caregiver Outcomes in the CONNECT Intervention for Patients With Advanced Cancer.Journal of pain and symptom management · 2023Trial
- Caregiving across distances: residential proximity, care activities, and mental health.The Gerontologist · 2026Article
- Developing and Evaluating an Inpatient Caregiver Support Program: Feasibility, Acceptability, and Perceived Impact.Mayo Clinic proceedings. Innovations, quality & outcomes · 2026Article
- Health Care Providers' Perceptions of Unmet Needs Among African American Cancer Caregivers: Qualitative Investigation Among US Medical Professionals.JMIR cancer · 2026Article
- Knowledge, Attitudes and Practice of Informal Caregivers of People Living With Stroke: A Scoping Review of Recent Literature.Journal of advanced nursing · 2026Article
- Striving for purposeful autonomy: a qualitative method to enhance autonomy measurement in older adults.BMC geriatrics · 2025Article
- Core needs screening items for informal caregivers of older adults: an online modified Delphi study.BMC geriatrics · 2025Article
- Navigating the Healthcare System With Chronic Illness: A Qualitative Study of Caregiver Experiences.Scandinavian journal of caring sciences · 2025Article
- A short form tool for clinical assessment of caregivers' reaction.BMC palliative care · 2025Article
- A look at caregivers for community-living persons with dementia: Implications for the GUIDE model.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- A Multisite Demonstration of Shared Access to Older Adults' Patient Portals.JAMA network open · 2025Article
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- "They forget that I'm a human being"-ward round communication with older patients living with frailty and informal caregivers: a qualitative study.European geriatric medicine · 2024Article
- Patient portal messages to support an age-friendly health system for persons with dementia.Journal of the American Geriatrics Society · 2024Observational
- Opportunities and Challenges for Augmented Reality in Family Caregiving: Qualitative Video Elicitation Study.JMIR formative research · 2024Article
- The Anxiety Burden in Patients with Chronic Intestinal Failure on Long-Term Parenteral Nutrition and in Their Caregivers.Nutrients · 2024Article
- Family physicians' preferences for education to support family caregivers: a sequential mixed methods study.BMC primary care · 2024Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
objectivesTo understand current practices, challenges, and opportunities for a systematic assessment of family caregivers' needs and risks in primary care.
designQualitative study consisting of in-depth semi-structured interviews.
settingFour primary care practices located in urban and rural settings.
participantsPrimary care clinicians, staff, and administrators (N = 30), as well as older adult patients and family caregivers (N = 40), recruited using purposive and maximum variation sampling. MEASUREMENTS: Current experiences, challenges, and opportunities for integrating standardized caregiver assessment into primary care delivery. Interviews were audio-recorded and transcribed; transcripts were analyzed using the constant comparative method of data analysis.
resultsParticipating clinicians had been in practice for an average of 12.8 years (range = 1-36 y). Patients had a mean age of 84.0 years (standard deviation [SD] = 9.7); caregivers had a mean age of 67.0 years (SD = 9.3). There was wide variability in current practices for identifying caregivers' needs and risks, encompassing direct and indirect approaches, when such issues are considered. Participants posited that integrating standardized caregiver assessment into primary care delivery could help improve patient care, enhance clinician-caregiver communication, and validate caregivers' efforts. Barriers to assessment included insufficient time and reimbursement, liability concerns, lack of awareness of community resources, and concerns about patient autonomy. To facilitate future uptake of caregiver assessment, participants recommended brief self-administered assessment tools and post-screen discussions with practice staff.
conclusionIdentification of caregivers' needs and risks in primary care is highly variable. Integration of standardized caregiver assessment into practice requires coordinated changes to policy, revision of practice workflows, and an interdisciplinary approach to the development of appropriate assessment tools. J Am Geriatr Soc 68:1262-1270, 2020.
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