ArticleThe Malaysian journal of medical sciences : MJMS2020
Parental Knowledge on Thalassaemia and Factors Associated with Refusal to Screen Their Children.
Article in The Malaysian journal of medical sciences : MJMS, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed, 17 citations in OpenAlex.
- Public awareness, knowledge and attitudes toward thalassemia and its screening in five high-prevalence countries: a cross-sectional study based on an online survey.BMC public health · 2026Article
- Experiences and insights of thalassaemia carriers from an indigenous community in Sabah, Malaysia.Journal of community genetics · 2025Article
- Applying health belief model among mothers of children with thalassemia.Scientific reports · 2025Article
- Awareness About Thalassemia Among the Parents of Thalassemic Children in Balochistan: A Cross-Sectional Study.Health science reports · 2025Article
- Nursing interventions for improving quality of life among parents with major Thalassemic children: a scoping review.BMC nursing · 2025Article
- Iron Deficiency Anaemia Screening and Management in Young Children: India and Southeast Asia Consensus.Anemia · 2025Article
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- Adolescents' experiences and views of the national school-based thalassaemia screening programme in Malaysia: a qualitative study.Journal of community genetics · 2023Article
- Cross-sectional study on knowledge, attitude and practice towards thalassaemia among Indonesian youth.BMJ open · 2021Observational
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Authors and funding
3 authors at 1 institution in 2 countries.
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No grant is acknowledged in the PubMed record.
Abstract
introductionAcceptance of a screening programme for thalassemia is important in managing the disease and its associated complications. The objective of this study was to determine the knowledge of thalassemia and factors associated with thalassemia screening refusal among parents of secondary school children.
methodsThis cross-sectional study was carried out from May 2017 to October 2017 among parents of fourth form students in three schools in Besut, Terengganu, Malaysia. Parents who are able to read and understand Malay and consented to the study were required to answer a validated questionnaire on their knowledge regarding thalassemia. They were also asked the reason for their acceptance or refusal of the thalassemia screening of their children.
resultsIn total, 273 participants took part in the study. The mean thalassemia knowledge score was 11.8 out of a maximum score of 21. Low knowledge scores (adjusted odds ratio [adj OR] 0.87; 95% confidence interval [CI]: 0.79, 0.95;
conclusionThe mean thalassemia knowledge score among parents remains unsatisfactory. A high knowledge score is important since it is associated with parental acceptance of thalassemia screening for their children.
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