ArticleJournal of general internal medicine2020
Lack of Awareness and Common Misconceptions About Palliative Care Among Adults: Insights from a National Survey.
Article in Journal of general internal medicine, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 60 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
60 citing papers in PubMed, 1 synthesis or guideline pooled it, 113 citations in OpenAlex.
- Economic evaluations in the palliative and end-of-life care settings: A systematic review of existing evidence, methods and quality.Palliative medicine · 2026Pooled it
- Results of a Feasibility Pilot Pragmatic Trial Implementing Palliative Care in Skilled Nursing Facilities.Journal of palliative medicine · 2025Trial
- Evaluation of a Novel Hospice-Specific Patient Decision Aid.The American journal of hospice & palliative care · 2024Trial
- What does it mean to die a bad death? Provider perspectives in the surgical intensive care unit.Surgery · 2026Article
- Family Caregivers' Understanding, Expectations, and Emotional Responses During Transition to a Palliative Care Unit: A Qualitative Study.Nursing open · 2026Article
- Ethical Challenges of Extracorporeal Membrane Oxygenation: Enhanced Recovery After Surgery Cardiac Society Consensus on Key Issues and Practical Recommendations.ASAIO journal (American Society for Artificial Internal Organs : 1992) · 2026Article
- Awareness and misconceptions of palliative care among paid, unpaid, and non-caregivers in the U.S.BMC palliative care · 2026Article
- Predictors of knowledge and attitudes toward palliative care among patients with cancer: a cross-sectional study.Scientific reports · 2026Article
- More patterns on palliative care identity: An autoethnography contribution.Palliative & supportive care · 2026Article
- "Hospice was Created by the KKK"-Black Americans' Perspectives on Hospice Care.Journal of racial and ethnic health disparities · 2026Article
- Co-designing a framework to communicate patient-centred outcomes in palliative care: involving patients and the public to reframe understanding.Journal of patient-reported outcomes · 2026Article
- Healthcare interprofessional palliative care educational needs: a qualitative multiple case study in Jamaica.BMC medical education · 2026Article
- Public understanding of palliative care and preferences for place of end-of-life care and death: A national population-based latent class analysis.Palliative care and social practice · 2026Article
- Palliative care in patients with brain metastases from breast cancer: a qualitative descriptive study of attitudes, practices, and barriers.BMC palliative care · 2025Article
- Implementing a new approach to enhance palliative care for people with dementia in Aruba, Bonaire, and Curaçao: a mixed-methods study.BMC palliative care · 2025Article
- Far from being the end of the road: taking a closer look at neuropalliative care in Parkinson's disease.Journal of neural transmission (Vienna, Austria : 1996) · 2025Review
- Aging with leukemia: public health strategies for optimizing quality of life and palliative care in refractory cases.Annals of medicine and surgery (2012) · 2025Review
- Assessment of Perceived HIV Vulnerability, Knowledge Regarding HIV Transmission, and Associated Sociodemographic Factors Among Urban Slum Dweller Adults in Bangladesh: A Cross-Sectional Study.Health science reports · 2025Article
- Timely integration of palliative care into oncology in hospitals in the Netherlands: a feasibility study.BMC health services research · 2025Article
- Timely integration of palliative care into oncology care for patients with bone metastases at the radiotherapy department: A pilot study on acceptability and feasibility.Technical innovations & patient support in radiation oncology · 2025Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDespite recent growth in palliative care programs palliative care remains underutilized. Studies suggest that patients and providers commonly associate palliative care with end of life, often leading to misconceptions and late referrals.
objectiveTo characterize self-reported palliative care knowledge and misconceptions about palliative care among US adults and demographic, health, and social role factors associated with knowledge and misconceptions.
designWe conducted secondary data analysis of nationally representative, self-reported data from the 2018 Health Information National Trends Survey (HINTS) 5, Cycle 2. We examined associations between knowledge and misconceptions about palliative care together with demographics, health care access, health status, and social roles.
participants3504 US adults. 2594 included in the first analysis after omitting missing cases; 683 who reported knowing about palliative care were included in the second analysis. MAIN MEASURES: Palliative care knowledge was self-reported in response to: "How would you describe your level of knowledge about palliative care?" Level of misconceptions was based on a series of factual and attitudinal statements about palliative care. KEY
resultsAmong US adults, 28.8% report knowing about palliative care, but only 12.6% report knowing what palliative care is and hold no misconceptions. Those most likely to report knowing about palliative care are female, college-educated, higher income, have a primary health care provider, or are a caregiver. Among those who report knowing about palliative care, misconceptions were common: 44.4% automatically think of death, 38.0% equate palliative care with hospice, 17.8% believe you must stop other treatments, and 15.9% see palliative care as giving up.
conclusionsUS adults who have some knowledge of palliative care are most likely to confuse it with hospice but are less likely to see it as requiring forgoing treatment or as giving up. Primary care clinicians should be encouraged to communicate about palliative care with patients.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.