Evidence map›Paper›PMID 32155819›Full record

ArticleInternational journal of environmental research and public health2020

Carers' Motivations for, and Experiences of, Participating in Suicide Research.

Myfanwy Maple, Sarah Wayland, Rebecca Sanford, Ailbhe Spillane, Sarah Coker

Abstract read
In one paragraph

Article in International journal of environmental research and public health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Lived Experience Participation in Suicide Prevention Activities in Australia, a Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Myfanwy MapleSchool of Health, Faculty of Medicine and Health, University of New England, Armidale, NSW 2351, Australia.ORCID 0000-0001-9398-4886
Sarah WaylandSchool of Health, Faculty of Medicine and Health, University of New England, Armidale, NSW 2351, Australia.ORCID 0000-0001-7040-6397
Rebecca SanfordSchool of Social Work and Human Service, Thompson Rivers University, Kamloops, BC V2C 0C8, Canada.
Ailbhe SpillaneNational Suicide Research Foundation, Western Gateway Building, Western Road, Cork T12 XF62, Ireland.
Sarah CokerFormerly SANE Australia, South Melbourne, VIC 3205, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

(1) Background: First-hand accounts of lived experience of suicide remain rare in the research literature. Increasing interest in the lived experience of suicide is resulting in more opportunities for people to participate in research based on their personal experience. How individuals choose to participate in research, and their experience of doing so, are important considerations in the ethical conduct of research. (2) Methods: To understand the experience of providing care for someone who has previously attempted suicide, a cross-sectional online community survey was conducted. This survey concluded with questions regarding motivation to participate and the experience of doing so. Of the 758 individuals who participated in the survey, 545 provided open-ended text responses to questions regarding motivation and 523 did so for questions regarding the experience of participating. It is these responses that are the focus of this paper. Data were analysed thematically. (3) Results: Motivations to participate were expressed as primarily altruistic in nature, with a future focus on improving the experience of the person who had attempted suicide alongside carers to ease distress. The experience of participating was difficult yet manageable, for all but a few participants. (4) Conclusions: With the increasing interest in first-hand accounts of suicide, how individuals experience participation in research is an important focus that requires further attention.

Indexed as

CaregiversMotivationSuicide, AttemptedCross-Sectional StudiesHumansSurveys and Questionnairescarersethical researchlived experienceresearch participationsuicide attempt

Identifiers

PMID32155819
PMCPMC7084311

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.