ArticleBMJ open2020
Returning to daily life: a qualitative interview study on parents of childhood cancer survivors in Germany.
Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it, 39 citations in OpenAlex.
- Taking Care of an Adolescent and Young Adult Cancer Survivor: A Systematic Review of the Impact of Cancer on Family Caregivers.International journal of environmental research and public health · 2023Pooled it
- Navigating the Psychosocial Journey: A Meta-Ethnographic Review of the Psychosocial Needs and Experiences of Children and Adolescents (0-19 Years) Diagnosed With Cancer Across the Care Continuum.Psycho-oncology · 2026Review
- The impact of a minor child's cancer diagnosis on parental work: a scoping review.Revista da Escola de Enfermagem da U S P · 2026Article
- Addressing gaps and enhancing experiences in support services for families of pediatric cancer survivors.Pediatric research · 2025Article
- Psychosocial Experiences of Omani Parents of Children and Adolescents Diagnosed with Cancer: A Qualitative Study.Oman medical journal · 2025Article
- "It is today that counts, and today everything is fine": coping strategies utilized by parents of children treated for cancer who seek psychological support - a qualitative study.BMC psychology · 2025Article
- Follow-up care needs and motivational factors for childhood cancer survivors and their parents in Germany.Scientific reports · 2025Article
- Article
- Factors associated with caregiver strain among mothers and fathers of children with advanced cancer.Palliative & supportive care · 2024Article
- Reintegration into school, kindergarten and work in families of childhood cancer survivors after a family-oriented rehabilitation program.Frontiers in pediatrics · 2024Article
- Mental health outcomes in parents of children with a cancer diagnosis in Sweden: A nationwide cohort study.EClinicalMedicine · 2023Article
- Fear of progression in parents of childhood cancer survivors: prevalence and associated factors.Journal of cancer survivorship : research and practice · 2022Article
- "I have to do things differently now, but I make it work"-young childhood cancer survivors' experiences of self-management in everyday living.Journal of cancer survivorship : research and practice · 2022Article
- Pediatric Cancer as a Factor of Changes in the Family.International journal of environmental research and public health · 2022Article
- Parents' perception of their children's process of reintegration after childhood cancer treatment.PloS one · 2020Article
Corrections and comments
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Authors and funding
7 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo investigate experiences of parents of paediatric cancer survivors in cancer-related changes in the parents' daily life (work life, family life, partner relationship and social life) during and after intensive cancer treatment and to examine the reintegration process with its impeding and facilitating factors.
designThe design of this cross-sectional study involves a qualitative content analysis of semistructured interviews.
settingParticipants were consecutively recruited in clinical settings throughout Germany.
participantsForty-nine parents (59% female) of 31 cancer survivors (aged 0-17 at diagnosis of leukaemia or central nervous system tumour) were interviewed approximately 16-24 months after the end of intensive cancer treatment (eg, chemotherapy).
resultsDuring treatment, more than 70% of parents reported difficulties reconciling paid work, household and family responsibilities and caring for the ill child. Couples spent little time with each other and approximately 25% reported dispute and burden. Many parents did not have enough energy for pursuing any hobbies during treatment. However, over the long term, being faced with the child's disease also led to strengthened relationships, new priorities, improved communication, increased mutual trust and greater appreciation for daily life. Supportive social networks (family/friends/employers), a strong partner relationship prior to the diagnosis and the use of psychosocial services (eg, family-oriented rehabilitation) had a positive impact. At the time of the interview, most families had adapted well. However, reintegration took time and some parents lacked the energy required to continue life as they did before the diagnosis.
conclusionsEven though most parents successfully readjusted to a new 'normality', reintegrating into daily life after paediatric cancer treatment remains difficult. Professional psychosocial support could help families with the reintegration process. Lastly, clinical staff (eg, physicians, psychologists, social workers) should bear in mind that the burden of parents does not automatically end with the end of intensive cancer treatment.
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