ArticleAnnals of family medicine2020
Effect of an Interactive Website to Engage Patients in Advance Care Planning in Outpatient Settings.
Article in Annals of family medicine, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it, 29 citations in OpenAlex.
- Effects of online advance care planning (ACP) decision aid programmes on adults with cancer: a systematic review and meta-analysis.BMC palliative care · 2026Pooled it
- Publicly Available, Interactive Web-Based Tools to Support Advance Care Planning: Systematic Review.Journal of medical Internet research · 2022Pooled it
- Randomised trial of a serious illness decision aid (Plan Well Guide) for patients and their substitute decision-makers to improve engagement in advance care planning.BMJ supportive & palliative care · 2022Trial
- Digital Framing in End-of-Life Communication: Constructing "Good Death" Support in the Discourse of Hospice Care Institutions in the UK and Hong Kong.Healthcare (Basel, Switzerland) · 2026Article
- Article
- Effects of intervention by trained care managers on advance care planning engagement among long-term care service users in Japan: a pre- and post-pilot comparative study across multiple institutions.Palliative care and social practice · 2024Article
- Compassionate engagement of communities in support of palliative and end-of-life care: challenges in post-pandemic era.Frontiers in medicine · 2024Article
- Tools for tomorrow: a scoping review of patient-facing tools for advance care planning.Palliative care and social practice · 2024Article
- GeriKit: A novel app for comprehensive geriatric assessment.Gerontology & geriatrics education · 2023Article
- Effect of an app for promoting advance care planning and motivating patients to write their advance directives.BMC health services research · 2023Article
- A Mobile App for Advance Care Planning and Advance Directives (Accordons-nous): Development and Usability Study.JMIR human factors · 2022Article
- Implementation of advance care planning amid the COVID-19 crisis: A narrative review and synthesis.Geriatrics & gerontology international · 2021Review
- Dissemination, use, and impact of a community-based, conversational advance care planning intervention: ripple effects of the Swedish DöBra cards.Palliative care and social practice · 2021Article
- Deconstructing the Complexities of Advance Care Planning Outcomes: What Do We Know and Where Do We Go? A Scoping Review.Journal of the American Geriatrics Society · 2021Article
- Adaptation and Preliminary Validation of the Advance Care Planning Engagement Survey for Surrogate Decision Makers.Journal of pain and symptom management · 2019Article
- Feasibility and acceptability of a web-based advance care plan for dementia.Geriatric nursing (New York, N.Y.)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
17 authors.
Funding
Abstract
purposeOnline programs may help to engage patients in advance care planning in outpatient settings. We sought to implement an online advance care planning program, PREPARE (Prepare for Your Care; http://www.prepareforyourcare.org), at home and evaluate the changes in advance care planning engagement among patients attending outpatient clinics.
methodsWe undertook a prospective before-and-after study in 15 primary care clinics and 2 outpatient cancer centers in Canada. Patients were aged 50 years or older (primary care) or 18 years or older (cancer care) and free of cognitive impairment. They used the PREPARE website over 6 weeks, with reminders sent at 2 or 4 weeks. We used the 55-item Advance Care Planning Engagement Survey, which measures behavior change processes (knowledge, contemplation, self-efficacy, readiness) on 5-point scales and actions relating to substitute decision makers, quality of life, flexibility for the decision maker, and asking doctors questions on an overall scale from 0 to 21; higher scores indicate greater engagement.
resultsIn total, 315 patients were screened and 172 enrolled, of whom 75% completed the study (mean age = 65.6 years, 51% female, 35% had cancer). The mean behavior change process score was 2.9 (SD 0.8) at baseline and 3.5 (SD 0.8) at follow-up (mean change = 0.6; 95% CI, 0.49-0.73); the mean action measure score was 4.0 (SD 4.9) at baseline and 5.2 (SD 5.4) at follow-up (mean change = 1.2; 95% CI, 0.54-1.77). The effect size was moderate (0.75) for the former and small (0.23) for the latter. Findings were similar in both primary care and cancer care populations.
conclusionsImplementation of the online PREPARE program in primary care and cancer care clinics increased advance care planning engagement among patients.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.