ReviewBMC palliative care2020
Underlying goals of advance care planning (ACP): a qualitative analysis of the literature.
Review in BMC palliative care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 56 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
56 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Patient autonomy in advance care planning for Parkinson's disease: Systematic review with narrative synthesis.Palliative & supportive care · 2026Pooled it
- [Evidence on Advance Care Planning for People with Dementia - A Systematic Review (2017-2023)].Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) · 2026Pooled it
- Effectiveness of Nurse Led Advance Care Planning Intervention for Chronic Respiratory Diseases: A Meta-Analysis.Nursing open · 2025Pooled it
- Factors related to advance directives completion among cancer patients: a systematic review.BMC palliative care · 2024Pooled it
- Raising awareness and preparation for what may come: next of kin experiences of advance care planning with frail, home-dwelling older adults in geriatric units.BMC health services research · 2025Trial
- Natural Language Processing to Identify Advance Care Planning Documentation in a Multisite Pragmatic Clinical Trial.Journal of pain and symptom management · 2022Trial
- Qualitative Analysis of Community Dwelling Older Adults' Advance Care Planning Interviews: Patients Want a Chance.The American journal of hospice & palliative care · 2026Article
- Disparities in Advance Care Planning: Did COVID-19 Change Anything?Journal of the American Geriatrics Society · 2026Article
- New horizons in advance care planning: narratives, identity and cultural humility.Age and ageing · 2026Review
- What are the barriers and facilitators to advance care planning with older people in long-term care facilities? A qualitative study.Journal of clinical nursing · 2026Article
- Intergenerational communication about advance care planning between older adults and their adult children: a qualitative dyadic study.BMC geriatrics · 2026Article
- From inferring preferences to enabling choice: potentials of digital tools to improve substitute decision-making.Frontiers in digital health · 2026Article
- Advance care planning with people living with dementia: ethical considerations of physicians in the United States and the Netherlands.The journals of gerontology. Series B, Psychological sciences and social sciences · 2025Article
- Developing a Set of Key Principles for Care Planning Within Older Adult Care Homes: A Modified Delphi Survey.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Physician Billing for Advance Care Planning Among Medicare Fee-For-Service Beneficiaries, 2016-2021.The Permanente journal · 2025Article
- Advance Care Planning in German General Practice: A Longitudinal Qualitative Study on Patients' Expectations and Experiences.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Factors Influencing Knowledge, Attitudes and Behaviour Towards Engaging with Advance Care Planning: A Cross-Sectional Survey of Chinese Diaspora.Journal of palliative care · 2025Article
- Could life story work support relational autonomy in advance care planning? Stories from the EARLI project.Australasian journal on ageing · 2025Article
- Optimizing Advance Care Planning in Dementia: Recommendations From a 33-Country Delphi Study.Journal of pain and symptom management · 2025Article
- Palliative Care and Advanced Cardiovascular Disease in Adults: Not Just End-of-Life Care: A Scientific Statement From the American Heart Association.Circulation · 2025Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
backgroundSince the introduction of the concept of advance care planning (ACP), many studies have been conducted exploring beneficial effects. These studies show a heterogeneity in clinical endpoints, which reflects diversity of goals connected to ACP. This study aims to get insight in the range of underlying goals that comprise the legitimacy of ACP.
methodsSystematic literature search in PubMed, EMBASE, PsychInfo, CINAHL and Cochrane Library. Articles on normative aspects of ACP were included, based on title and abstract. Due to the quantity of inclusions, of which many had similar content, purposive sampling was used to select articles for full text document analysis. Analysis stopped once saturation was reached.
resultsIn total, 6497 unique articles were found of which 183 were included. Saturation was reached after document analysis of 55 articles (30%); this yielded 141 codes concerning goals of ACP and also 70 codes about objections against ACP, which shed light on the underlying goals of ACP as well. We identified five underlying goals: respecting individual patient autonomy, improving quality of care, strengthening relationships, preparing for end-of-life, reducing overtreatment.
conclusionsFive distinctive underlying goals of ACP were identified, each with corresponding objections that need to be considered. Specifying underlying goals of ACP may direct the debate on definitions, methods and preferred outcomes of ACP. This study was funded by the Netherlands Organisation for Health Research and Development, grant 839120002.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.