ArticleJournal of pediatric psychology2020
Psychosocial Screening in Sickle Cell Disease: Validation of the Psychosocial Assessment Tool.
Article in Journal of pediatric psychology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
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Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it, 19 citations in OpenAlex.
- Mental and Emotional Health of Caregivers of Youth with Sickle Cell Disease: A Systematic Review.Journal of health care for the poor and underserved · 2023Pooled it
- Assessing psychosocial risk factors in children with Sickle Cell Disease.BMC health services research · 2025Article
- Impact of Neighborhood Disadvantage on Preventive and Acute Care Utilization in Sickle Cell Disease.Pediatric blood & cancer · 2025Article
- Practice Patterns for Addressing Developmental-Behavioral Concerns in Sickle Cell Specialty Care.Clinical practice in pediatric psychology · 2023Article
- Fatigue, Stress Appraisal, and Emotional Functioning Among Youth With Sickle Cell Disease: A Daily Diary Study.Journal of pediatric psychology · 2023Article
- Article
- Families following pediatric traumatic medical events: identifying psychosocial risk profiles using latent profile analysis.European journal of psychotraumatology · 2022Article
- Psychosocial risk and health care utilization in pediatric sickle cell disease.Pediatric blood & cancer · 2021Article
- Implementation of family psychosocial risk assessment in pediatric cancer with the Psychosocial Assessment Tool (PAT): study protocol for a cluster-randomized comparative effectiveness trial.Implementation science : IS · 2020Article
- Screening for caregiver psychosocial risk in children with medical complexity: a cross-sectional study.BMJ paediatrics open · 2020Article
Corrections and comments
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Authors and funding
8 authors at 2 institutions in 1 country.
Funding
Abstract
objectiveFamilies of youth with Sickle Cell Disease (SCD) can face psychosocial adversity including emotional distress, functional impairments, and sociodemographic risk factors. Systematic screening of psychosocial risk can identify families who may benefit from further assessment and evidence-based care. The Psychosocial Assessment Tool (PAT) is a brief caregiver-report screener based on the tri-level Pediatric Psychosocial Preventative Health Model (PPPHM).
methodsFindings are presented from the baseline assessment of a longitudinal study validating a Sickle Cell version of the PAT 2.0. Primary caregivers of 136 youth with SCD receiving care through a multidisciplinary SCD clinic in a children's hospital completed the PAT and validation measures. A subset of 25 caregivers completed the PAT a second time within 3-5 weeks.
resultsInternal consistency for the total score was strong (α = .87), and for the subscales was moderate to strong (α = .74-.94), with the exception of the Family Structure (α = .38), Caregiver Beliefs (α = .48), and Stress Reactions (α = .56) subscales. Test-retest reliability was also strong (r = .86, p < .001). Moderate to strong correlations with all except two criteria measures provided validation for the total and subscale scores. Validation measures varied significantly across the three levels of the PPPHM.
conclusionsResults provide support for the reliability and validity of the PAT in SCD. Systematic screening with the PAT can help identify families of youth with SCD at risk for psychosocial problems and potentially help connect them to appropriate services.
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