ArticlePediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies2020
Palliative Care in Children With Heart Disease Treated in an ICU.
Article in Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
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The trial behind it
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it, 36 citations in OpenAlex.
- Impact of Subspecialty Pediatric Palliative Care on Children with Heart Disease; A Systematic Review and Meta-analysis.Pediatric cardiology · 2025Pooled it
- Pediatric Palliative Care Utilization Following Out-of-Hospital Cardiac Arrest at a Large US Quaternary Hospital.Children (Basel, Switzerland) · 2026Article
- Inpatient Palliative Care for Pediatric Neurologic and Neuromuscular Illnesses in the U.S.-A National Perspective.Children (Basel, Switzerland) · 2026Article
- Impact of palliative care consultation on neonatal end-of-life care utilization.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Palliative Care Referral Patterns and Implications for Standardization in Cardiac ICU.Pediatric cardiology · 2025Article
- Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence.Palliative medicine · 2024Article
- Timing of Pediatric Palliative Care Consults in Hospitalized Patients with Heart Disease.Journal of pediatric intensive care · 2023Article
- An Automatic Pediatric Palliative Care Consultation for Children Supported on Extracorporeal Membrane Oxygenation: A Survey of Perceived Benefits and Barriers.Journal of palliative medicine · 2022Article
- Assessment of an Instrument to Measure Interdisciplinary Staff Perceptions of Quality of Dying and Death in a Pediatric Cardiac Intensive Care Unit.JAMA network open · 2022Article
- A "Good Death" for Children with Cardiac Disease.Pediatric cardiology · 2022Article
- Palliative Care Utilization Following Out-of-Hospital Cardiac Arrest in Pediatrics.Critical care explorations · 2022Article
- Is this as good as it gets? Implications of an asymptotic mortality decline and approaching the nadir in pediatric intensive care.European journal of pediatrics · 2022Review
- Prevalence of specialised palliative care consultation for eligible children within a paediatric cardiac ICU.Cardiology in the young · 2021Article
- Redefining the Relationship: Palliative Care in Critical Perinatal and Neonatal Cardiac Patients.Children (Basel, Switzerland) · 2021Review
- Increasing Pediatric Palliative Care Consultation for Patients with Heart Disease and Prolonged Cardiac Intensive Care Stay.Pediatric quality & safetyArticle
Corrections and comments
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Authors and funding
8 authors at 1 institution in 1 country.
Funding
Abstract
objectivesDescribe pediatric palliative care consult in children with heart disease; retrospectively apply Center to Advance Palliative Care criteria for pediatric palliative care consults; determine the impact of pediatric palliative care on end of life.
designA retrospective single-center study.
settingA 16-bed cardiac ICU in a university-affiliated tertiary care children's hospital. PATIENTS: Children (0-21 yr old) with heart disease admitted to the cardiac ICU from January 2014 to June 2017. MEASUREMENTS AND MAIN
resultsOver 1,000 patients (n = 1, 389) were admitted to the cardiac ICU with 112 (8%) receiving a pediatric palliative care consultation. Patients who received a consult were different from those who did not. Patients who received pediatric palliative care were younger at first hospital admission (median 63 vs 239 d; p = 0.003), had a higher median number of complex chronic conditions at the end of first hospitalization (3 vs 1; p < 0.001), longer cumulative length of stay in the cardiac ICU (11 vs 2 d; p < 0.001) and hospital (60 vs 7 d; p < 0.001), and higher mortality rates (38% vs 3%; p < 0.001). When comparing location and modes of death, patients who received pediatric palliative care were more likely to die at home (24% vs 2%; p = 0.02) and had more comfort care at the end of life (36% vs 2%; p = 0.002) compared to those who did not. The Center to Advance Palliative Care guidelines identified 158 patients who were eligible for pediatric palliative care consultation; however, only 30 patients (19%) in our sample received a consult.
conclusionsPediatric palliative care consult rarely occurred in the cardiac ICU. Patients who received a consult were medically complex and experienced high mortality. Comfort care at the end of life and death at home was more common when pediatric palliative care was consulted. Missed referrals were apparent when Center to Advance Palliative Care criteria were retrospectively applied.
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Registered trials
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