ArticleBMC medical informatics and decision making2020
Content and system development of a digital patient-provider communication tool to support shared decision making in chronic health care: InvolveMe.
Article in BMC medical informatics and decision making, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04218721 (Implementing eHealth Interventions Into Regular Clinical Practice to Enhance Care Planning, Communication and Patient Involvement), which is not on this map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Implementing eHealth Interventions Into Regular Clinical Practice to Enhance Care Planning, Communication and Patient Involvement
Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Systematic review on the involvement and engagement of patients as advisers for the organisation of organ transplantation services.BMJ open · 2023Pooled it
- Cocreating a Digital Patient Preparedness Tool for International Students Accessing Primary Care in Germany: A Convergent Methods Study Within the Health CASCADE Network.JMIR human factors · 2026Article
- Development of a digital tool to support overview in complex patient cases: Which information elements support the clinical workflow?BMC health services research · 2026Article
- Exploring professionals' experiences with secure messaging in Dutch outpatient clinics: emerging differences in use frequencies and types across medical specialties.BMC medical informatics and decision making · 2025Article
- Looking beyond the eyes of the patient: The importance of effective communication in the treatment of age-related macular degeneration.Acta ophthalmologica · 2025Article
- Integrating general practitioners' and patients' perspectives in the development of a digital tool supporting primary care for older patients with multimorbidity: a focus group study.Frontiers in digital health · 2025Article
- Development of a Digital Tool for People With a Long-Term Condition Using Stroke as a Case Example: Participatory Design Approach.JMIR human factors · 2022Article
- Research on Digital Technology Use in Cardiology: Bibliometric Analysis.Journal of medical Internet research · 2022Article
- Feasibility of a Digital Patient-Provider Communication Intervention to Support Shared Decision-Making in Chronic Health Care, InvolveMe: Pilot Study.JMIR formative research · 2022Article
- Stakeholders' Perspectives on Partnering to Inform the Software Development Lifecycle of Smartphone Applications for People with Serious Mental Illness: Enhancing the Software Development Lifecycle Through Stakeholder Engagement.Proceedings. IEEE Global Humanitarian Technology Conference · 2021Article
- Usability Testing of a Mobile Health Application for Self-Management of Serious Mental Illness in a Norwegian Community Mental Health Setting.International journal of environmental research and public health · 2021Article
- A Digital Patient-Provider Communication Intervention (InvolveMe): Qualitative Study on the Implementation Preparation Based on Identified Facilitators and Barriers.Journal of medical Internet research · 2021Article
- Translation and cultural adaptation of a romanian version of the communication assessment tool (CAT_Ro).BMC health services research · 2021Article
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundChronic conditions present major health problems, affecting an increasing number of individuals who experience a variety of symptoms that impact their health related quality of life. Digital tools can be of support in chronic conditions, potentially improving patient-provider communication, promoting shared decision making for treatment and care, and possibly even improving patient outcomes. This study aimed to develop a digital tool for patient-provider communication in chronic health care settings and describes the data collection and subsequent content and software development of the InvolveMe tool. InvolveMe will provide patients with the opportunity to report symptoms and preferences to their health care providers (HCP), and to use secure messaging to interact with the HCPs.
methodThe study employed a combination of interviews with patients with chronic conditions and focus groups with HCPs, examining experiences with chronic conditions and the potential use of a digital tool for support. Participants were recruited from two outpatient clinics at a university hospital. Data collected from interviews and focus groups were analysed using thematic analysis. Content and software development was informed by the data collection and by tool development workshops.
resultsAnalyses from interviews with patients (n = 14) and focus groups with HCPs (n = 11) generated three main themes: 1) Making symptoms and challenges visible, 2) Mastering a new life, and 3) Digital opportunities for follow-up. Each main theme generated separate subthemes. Theme 1 and 2 gave input for content development of the symptom and needs assessment part of the tool, while theme 3 provided ideas for the software development of the InvolveMe tool. Tool development workshops with patients (n = 6) and HCPs (n = 6) supplemented the development.
conclusionsA digital tool such as InvolveMe has the potential to support shared decision making for patients with chronic health conditions. Through integration with an existing patient portal such a tool can provide opportunities for meaningful interactions and communication between patients and HCP's, particularly with regards to symptoms, needs and preferences for care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.