Evidence map›Paper›PMID 32127383›Full record

ArticleCMAJ open

Patient and caregiver experience in the transition from hospital to home - brainstorming results from group concept mapping: a patient-oriented study.

Tara Kiran, David Wells, Karen Okrainec, Carol Kennedy, Kimberly Devotta, Gracia Mabaya, Lacey Phillips, Amy Lang, Pat O'Campo

Registry-linked trialAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in CMAJ open. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06679309 (Paving a Road Map for Integrated Care Evaluation in Canada), which is not on this map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06679309 nanot yet recruitingnot on this map

Paving a Road Map for Integrated Care Evaluation in Canada: A Mixed Methods Evaluation for Patients With Complex Care Needs in Ontario and Alberta

TypeinterventionalSponsorUniversity of CalgaryRan2025 to 2028Enrolled2,000ConditionsHealth Care Quality, Access, and EvaluationArmsIntegrated care plan
3 · Its place in the literature

Who cites it

8 citing papers in PubMed.

  1. Article
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  5. Development of the Engage with Impact Toolkit: A comprehensive resource to support the evaluation of patient, family and caregiver engagement in health systems.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Tara KiranDepartment of Family and Community Medicine (Kiran), St. Michael's Hospital; Department of Family and Community Medicine (Kiran), Institute of Health Policy, Management and Evaluation (Kiran) and Dalla Lana School of Public Health (Devotta, O'Campo), University of Toronto; Centre for Urban Health Solutions (Kiran, Devotta, O'Campo), Li Ka Shing Knowledge Institute of St. Michael's Hospital; Ontario Health (Quality Business Unit) (Kiran, Wells, Kennedy, Mabaya, Phillips, Lang); Department of Medicine (Okrainec), University Health Network and University of Toronto, Toronto, Ont. tara.kiran@utoronto.ca.
David WellsDepartment of Family and Community Medicine (Kiran), St. Michael's Hospital; Department of Family and Community Medicine (Kiran), Institute of Health Policy, Management and Evaluation (Kiran) and Dalla Lana School of Public Health (Devotta, O'Campo), University of Toronto; Centre for Urban Health Solutions (Kiran, Devotta, O'Campo), Li Ka Shing Knowledge Institute of St. Michael's Hospital; Ontario Health (Quality Business Unit) (Kiran, Wells, Kennedy, Mabaya, Phillips, Lang); Department of Medicine (Okrainec), University Health Network and University of Toronto, Toronto, Ont.
Karen OkrainecDepartment of Family and Community Medicine (Kiran), St. Michael's Hospital; Department of Family and Community Medicine (Kiran), Institute of Health Policy, Management and Evaluation (Kiran) and Dalla Lana School of Public Health (Devotta, O'Campo), University of Toronto; Centre for Urban Health Solutions (Kiran, Devotta, O'Campo), Li Ka Shing Knowledge Institute of St. Michael's Hospital; Ontario Health (Quality Business Unit) (Kiran, Wells, Kennedy, Mabaya, Phillips, Lang); Department of Medicine (Okrainec), University Health Network and University of Toronto, Toronto, Ont.
Carol KennedyDepartment of Family and Community Medicine (Kiran), St. Michael's Hospital; Department of Family and Community Medicine (Kiran), Institute of Health Policy, Management and Evaluation (Kiran) and Dalla Lana School of Public Health (Devotta, O'Campo), University of Toronto; Centre for Urban Health Solutions (Kiran, Devotta, O'Campo), Li Ka Shing Knowledge Institute of St. Michael's Hospital; Ontario Health (Quality Business Unit) (Kiran, Wells, Kennedy, Mabaya, Phillips, Lang); Department of Medicine (Okrainec), University Health Network and University of Toronto, Toronto, Ont.
Kimberly DevottaDepartment of Family and Community Medicine (Kiran), St. Michael's Hospital; Department of Family and Community Medicine (Kiran), Institute of Health Policy, Management and Evaluation (Kiran) and Dalla Lana School of Public Health (Devotta, O'Campo), University of Toronto; Centre for Urban Health Solutions (Kiran, Devotta, O'Campo), Li Ka Shing Knowledge Institute of St. Michael's Hospital; Ontario Health (Quality Business Unit) (Kiran, Wells, Kennedy, Mabaya, Phillips, Lang); Department of Medicine (Okrainec), University Health Network and University of Toronto, Toronto, Ont.
Gracia MabayaDepartment of Family and Community Medicine (Kiran), St. Michael's Hospital; Department of Family and Community Medicine (Kiran), Institute of Health Policy, Management and Evaluation (Kiran) and Dalla Lana School of Public Health (Devotta, O'Campo), University of Toronto; Centre for Urban Health Solutions (Kiran, Devotta, O'Campo), Li Ka Shing Knowledge Institute of St. Michael's Hospital; Ontario Health (Quality Business Unit) (Kiran, Wells, Kennedy, Mabaya, Phillips, Lang); Department of Medicine (Okrainec), University Health Network and University of Toronto, Toronto, Ont.
Lacey PhillipsDepartment of Family and Community Medicine (Kiran), St. Michael's Hospital; Department of Family and Community Medicine (Kiran), Institute of Health Policy, Management and Evaluation (Kiran) and Dalla Lana School of Public Health (Devotta, O'Campo), University of Toronto; Centre for Urban Health Solutions (Kiran, Devotta, O'Campo), Li Ka Shing Knowledge Institute of St. Michael's Hospital; Ontario Health (Quality Business Unit) (Kiran, Wells, Kennedy, Mabaya, Phillips, Lang); Department of Medicine (Okrainec), University Health Network and University of Toronto, Toronto, Ont.
Amy LangDepartment of Family and Community Medicine (Kiran), St. Michael's Hospital; Department of Family and Community Medicine (Kiran), Institute of Health Policy, Management and Evaluation (Kiran) and Dalla Lana School of Public Health (Devotta, O'Campo), University of Toronto; Centre for Urban Health Solutions (Kiran, Devotta, O'Campo), Li Ka Shing Knowledge Institute of St. Michael's Hospital; Ontario Health (Quality Business Unit) (Kiran, Wells, Kennedy, Mabaya, Phillips, Lang); Department of Medicine (Okrainec), University Health Network and University of Toronto, Toronto, Ont.
Pat O'CampoDepartment of Family and Community Medicine (Kiran), St. Michael's Hospital; Department of Family and Community Medicine (Kiran), Institute of Health Policy, Management and Evaluation (Kiran) and Dalla Lana School of Public Health (Devotta, O'Campo), University of Toronto; Centre for Urban Health Solutions (Kiran, Devotta, O'Campo), Li Ka Shing Knowledge Institute of St. Michael's Hospital; Ontario Health (Quality Business Unit) (Kiran, Wells, Kennedy, Mabaya, Phillips, Lang); Department of Medicine (Okrainec), University Health Network and University of Toronto, Toronto, Ont.

Funding

CIHR
6 · The paper itself

Abstract

backgroundImproving the quality of care for patients who return home after a hospital stay is an international priority; however, few jurisdictions have engaged broadly with patients and caregivers to understand what most affects their experience transitioning home. We performed Ontario-wide group concept mapping, beginning with a brainstorming phase, to understand patient and caregiver priorities in the transition.

methodsWe used group concept mapping to engage patients and caregivers who had lived experience transitioning from hospital to home in Ontario in the previous 3 years. We report on the first phase, brainstorming, conducted over 10 weeks beginning Jan. 11, 2018 via an online survey or facilitated group discussion. Participants responded to a single focal prompt: "When leaving the hospital for home, some thing(s) that affected the experience were: ____." The study team identified recurrent concepts and overarching themes. Patients and caregivers informed the study design, recruitment and data interpretation.

resultsIn all, 665 people (263 patients [39.5%], 352 caregivers [52.9%] and 50 people who were both patient and caregiver [7.5%]) participated in brainstorming online, and 71 people participated in 1 of 8 group discussions. Participants identified 6 key areas affecting their experience of transition from hospital to home: home and community care, the discharge process, medical follow-up after discharge, medications, patient and caregiver education, and the kindness and caring of the health care team in hospital. Most notable were challenges with the timeliness, sufficiency, reliability and consistency of publicly funded home care services.

interpretationPatients and caregivers from across Ontario noted a range of issues affecting their experience transitioning from hospital to home, particularly the quality and sufficiency of publicly funded home care. Our findings will be used to inform a provincial quality standard on the transition from hospital to home.

Indexed as

CaregiversHome Care ServicesPatient CareTransitional CareAdolescentAdultAgedAged, 80 and overChildChild, PreschoolCommunity Health ServicesFemaleHospitalizationHumansMaleMiddle Aged

Identifiers

PMID32127383
PMCPMC7055492

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.