Evidence map›Paper›PMID 32126998›Full record

ArticleBMC health services research2020

Validation of the patient assessment of chronic illness care (PACIC) short form scale in heart transplant recipients: the international cross-sectional bright study.

Katia Iglesias, Sabina De Geest, Lut Berben, Fabienne Dobbels, Kris Denhaerynk, L Cynthia Russell, Remon Helmy, Isabelle Peytremann-Bridevaux, BRIGHT study team

Registry-linked trialOpen access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC health services research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT01608477 (Building Research Initiative Group), which is not on this map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.0field-weighted citation impact, top 24% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT01608477 unknown statusnot on this map

Building Research Initiative Group: Chronic Illness Management and Adherence in Transplantation

TypeobservationalSponsorUniversity of BaselRan2012 to 2020Enrolled1,365ConditionsHeart Transplantation
3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 13 citations in OpenAlex.

  1. Article
  2. Trust in the Transplant Team Associated With the Level of Chronic Illness Management-A Secondary Data Analysis of the International BRIGHT Study.Transplant international : official journal of the European Society for Organ Transplantation · 2024
    Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 2 institutions in 4 countries.

Katia IglesiasSchool of Health Sciences (HEdS-FR), University of Applied Sciences and Arts of Western Switzerland (HES-SO), Route des Arsenaux 16a, 1700, Fribourg, Switzerland. katia.iglesias@hefr.ch.ORCID https://orcid.org/0000-0003-1308-1631
Sabina De GeestInstitute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Bernoullistrasse 28, 4056, Basel, CH, Switzerland. sabina.degeest@unibas.ch.
Lut BerbenInstitute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Bernoullistrasse 28, 4056, Basel, CH, Switzerland.
Fabienne DobbelsInstitute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Bernoullistrasse 28, 4056, Basel, CH, Switzerland.
Kris DenhaerynkInstitute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Bernoullistrasse 28, 4056, Basel, CH, Switzerland.
L Cynthia RussellSchool of Nursing and Health Studies, University of Missouri-Kansas City, Kansas City, MO, USA.
Remon HelmyInstitute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Bernoullistrasse 28, 4056, Basel, CH, Switzerland.
Isabelle Peytremann-BridevauxInstitute of Nursing Science, Department Public Health, Faculty of Medicine, University of Basel, Bernoullistrasse 28, 4056, Basel, CH, Switzerland.
BRIGHT study team
University of Basel · CHHES-SO University of Applied Sciences and Arts Western Switzerland · CH

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundTransplant recipients are chronically ill patients, who require lifelong follow-up to manage co-morbidities and prevent graft loss. This necessitates a system of care that is congruent with the Chronic Care Model. The eleven-item self-report Patient Assessment of Chronic Illness Care (PACIC) scale assesses whether chronic care is congruent with the Chronic Care Model, yet its validity for heart transplant patients has not been tested.

methodsWe tested the validity of the English version of the PACIC, and compared the similarity of the internal structure of the PACIC across English-speaking countries (USA, Canada, Australia and United Kingdom) and across six languages (French, German, Dutch, Spanish, Italian and Portuguese). This was done using data from the cross-sectional international BRIGHT study that included 1378 heart transplant patients from eleven countries across 4 continents. To test the validity of the instrument, confirmatory factor analyses to check the expected unidimensional internal structure, and relations to other variables, were performed.

resultsMain analyses confirmed the validity of the English PACIC version for heart transplant patients. Exploratory analyses across English-speaking countries and languages also confirmed the single factorial dimension, except in Italian and Spanish.

conclusionThis scale could help healthcare providers monitor level of chronic illness management and improve transplantation care.

trial registrationClinicaltrials.gov ID: NCT01608477, first patient enrolled in March 2012, registered retrospectively: May 30, 2012.

Indexed as

Heart TransplantationSurveys and QuestionnairesAdultAgedAustraliaCanadaChronic DiseaseCross-Sectional StudiesFactor Analysis, StatisticalFemaleHumansLanguageMaleMiddle AgedReproducibility of ResultsUnited KingdomChronic care modelHeart transplantationLanguageMulti-center trialPACIC short formTransplant team

Identifiers

PMID32126998
PMCPMC7055084
OpenAlexW3012330377

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.