Evidence map›Paper›PMID 32112234›Full record

ArticleJournal of autism and developmental disorders2023

"It Defines Who I Am" or "It's Something I Have": What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?

Simon M Bury, Rachel Jellett, Jennifer R Spoor, Darren Hedley

Open access · greenAbstract read
PubMed Publisher
In one paragraph

Article in Journal of autism and developmental disorders, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 162 papers, 15 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
162citing papers in PubMed, 15 pooled it
27.7field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

162 citing papers in PubMed, 15 syntheses or guidelines pooled it, 430 citations in OpenAlex.

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  3. Understanding the Autistic Experience of Restrictive Eating Disorders-A Systematic Review and Qualitative-Synthesis.European eating disorders review : the journal of the Eating Disorders Association · 2025
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  5. First Impressions Towards Autistic People: A Systematic Review and Meta-Analysis.Autism research : official journal of the International Society for Autism Research · 2025
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  12. Music therapy for autistic people.The Cochrane database of systematic reviews · 2022
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102 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 1 institution in 1 country.

Simon M BuryOlga Tennison Autism Research Centre, School of Psychology and Public Health, La Trobe University, Melbourne, VIC, 3086, Australia. S.Bury@latrobe.edu.au.ORCID https://orcid.org/0000-0003-1273-9091
Rachel JellettOlga Tennison Autism Research Centre, School of Psychology and Public Health, La Trobe University, Melbourne, VIC, 3086, Australia.ORCID https://orcid.org/0000-0002-7018-8593
Jennifer R SpoorLa Trobe Business School, College of Arts, Social Sciences and Commerce, La Trobe University, Melbourne, Australia.ORCID http://orcid.org/0000-0003-1205-8317
Darren HedleyOlga Tennison Autism Research Centre, School of Psychology and Public Health, La Trobe University, Melbourne, VIC, 3086, Australia.ORCID https://orcid.org/0000-0002-6256-7104
La Trobe University · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

There has been a recent shift from person-first to identity-first language to describe autism. In this study, Australian adults who reported having a diagnosis of autism (N = 198) rated and ranked autism-terms for preference and offensiveness, and explained their choice in free-text. 'Autistic', 'Person on the Autism Spectrum', and 'Autistic Person' were rated most preferred and least offensive overall. Ranked-means showed 'person on the autism spectrum' was the most preferred term overall. Six qualitative themes reflected (1) autism as core to, or (2) part of one's identity, (3) 'spectrum' reflecting diversity, (4) the rejection of stigmatising and (5) medicalised language, and (6) pragmatics. These findings highlight the importance of inclusive dialogue regarding individual language preference.

Indexed as

Autism Spectrum DisorderAutistic DisorderAdultAustraliaHumansLanguageAutismAutism identityIdentity-firstLabel preferencePerson-firstTerminology

Identifiers

PMID32112234
OpenAlexW3007056653

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.