Evidence map›Paper›PMID 32112189›Full record

ArticleJournal of patient-reported outcomes2020

Development and validation of an interpretive guide for PROMIS scores.

Nan E Rothrock, Dagmar Amtmann, Karon F Cook

2 registry-linked trialsAbstract read
In one paragraph

Article in Journal of patient-reported outcomes, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 107 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
107citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06548022 nacompletednot on this mapstarted 2024, after this paper: background citation

Rare Group Problem Management Plus

TypeinterventionalSponsorChildren's National Research InstituteRan2024 to 2025Enrolled8ConditionsAnxiety, Depressive Symptoms, Post-traumatic Stress Disorder, Problems PsychosocialArmsRare Group Problem Management Plus
NCT07054320 active not recruitingnot on this mapstarted 2025, after this paper: background citation

Rapamycin Treatment for Prevention of Infection-related Illness

TypeobservationalSponsorHoskinson Health and Wellness ClinicRan2025 to 2026Enrolled15ConditionsInfectious DiseasesArmsObservational procedures
3 · Its place in the literature

Who cites it

107 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Are OMERACT recommendations followed in clinical trials on fibromyalgia? A systematic review of patient-reported outcomes and their measures.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023
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47 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Nan E RothrockDepartment of Medical Social Sciences, Feinberg School of Medicine of Northwestern University, 625 N. Michigan Ave Suite 2700, Chicago, IL, 60660, USA. n-rothrock@northwestern.edu.ORCID http://orcid.org/0000-0002-4821-5030
Dagmar AmtmannDepartment of Rehabilitation Medicine, University of Washington, Seattle, WA, USA.
Karon F CookDepartment of Medical Social Sciences, Feinberg School of Medicine of Northwestern University, 625 N. Michigan Ave Suite 2700, Chicago, IL, 60660, USA.

Funding

The National Person-Centered Assessment Resource (PCAR)U2CCA186878 · NCI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI GERSHON, RICHARD · 2014 to 2018
$11.9M
NCI NIH HHS U2C CA186878
6 · The paper itself

Abstract

backgroundAccurate score interpretation is required for the appropriate use of patient-reported outcome measures in clinical practice.

objectiveTo create and evaluate figures (T-score Maps) to facilitate the interpretation of scores on Patient-Reported Outcome Measurement Information System (PROMIS) measures.

methodsFor 21 PROMIS® short forms, item-level information was used to predict the most probable responses to items for the range of possible scores on each short form. Predicted responses were then "mapped" graphically along the range of possible scores. In a previously conducted longitudinal study, 1594 adult participants with chronic conditions (e.g., multiple sclerosis) responded to four items each of a subset of these PROMIS short forms. Participants' responses to these items were compared to those predicted by the T-score Maps. Difference scores were calculated between observed and predicted scores, and Spearman correlations were calculated.

resultsWe constructed T-score Maps for 21 PROMIS short forms for adults and pediatric self- and parent-proxy report. For the clinical population, participants' actual responses were strongly correlated with their predicted responses (r = 0.762 to 0.950). The majority of predicted responses exactly matched observed responses (range 69.5% to 85.3%).

conclusionResults support the validity of the predicted responses used to construct T-score Maps. T-score Maps are ready to be tested as interpretation aids in a variety of applications.

Indexed as

Item response theoryPatient-reported outcomesPROMIS

Identifiers

PMID32112189
PMCPMC7048882

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.