ArticleJournal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners
Self-Management, Self-Efficacy, and Health-Related Quality of Life in Children With Chronic Illness and Medical Complexity.
Article in Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05980780 (Video Developed for Children With Familial Mediterranean Fever The Effect of Game on Disease Management and Quality of Life), which is not on this map. Cited by 31 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Video Developed for Children With Familial Mediterranean Fever The Effect of Game on Disease Management and Quality of Life
Who cites it
31 citing papers in PubMed, 2 syntheses or guidelines pooled it, 71 citations in OpenAlex.
- Exploring the mechanism of self-management: the role of social support, self-efficacy, and health literacy based on meta-analytic structural equation modeling.BMC public health · 2025Pooled it
- Instruments Measuring Self-Care in Children and Young Adults With Chronic Conditions: A Systematic Review.Frontiers in pediatrics · 2022Pooled it
- Training programs for families of children on home peritoneal dialysis: a scoping review.Pediatric nephrology (Berlin, Germany) · 2026Review
- Observational
- Assessing Quality of Life in Genetic Cardiomyopathies: A Scoping Review.International journal of environmental research and public health · 2026Article
- Development and Validation of a Tool to Assess Disease-Related Knowledge in Children with Coeliac Disease.Journal of clinical medicine · 2026Article
- Self-Management for Youth Living with Sickle Cell Disease (SMYLS): A study protocol for a multisite randomized controlled trial testing a behavioral, mHealth app.Contemporary clinical trials · 2025Article
- Keeping Up With School During Hospitalization for Children With Chronic Illnesses, Siblings and Parents.Child: care, health and development · 2025Article
- Experiences and Needs Regarding Information Provision in Children With Haemophilia: A Qualitative Study on Caregivers' and Healthcare Providers' Perspectives.Haemophilia : the official journal of the World Federation of Hemophilia · 2025Article
- Article
- Parent-Adolescent Communication, Self-Efficacy, and Self-Management of Type 1 Diabetes in Adolescents.The science of diabetes self-management and care · 2025Article
- PACOPED QL: Development and evaluation of the quality-of-life scale for children with life-threatening illnesses.Palliative & supportive care · 2025Article
- Partnering With Schools for Community-Based Health Interventions: How Educating Children Improves Hypertension Awareness.Ochsner journal · 2025Article
- Research on the impact of health empowerment on self-management in older patients with chronic disease: based on chain mediating effect analysis.Frontiers in public health · 2025Article
- Experiences of Inpatient Healthcare Services Among Children With Medical Complexity and Their Families: A Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Psychometric Properties of the Revised Self-Efficacy for Diabetes Self-Management Scale among Spanish Children and Adolescents with Type 1 Diabetes.Children (Basel, Switzerland) · 2024Article
- Hospital-to-home transitions for children with medical complexity: part 2-a core outcome set.European journal of pediatrics · 2023Article
- What Are the Various Comprehensive Treatment Models to Improve Self-Efficacy and Self-Management in Adolescents with Diabetes Mellitus? A Scoping Review.Iranian journal of public health · 2023Article
- Psychometric Characteristics of the Self-Care of Chronic Illness Inventory in Older Adults Living in a Middle-Income Country.International journal of environmental research and public health · 2023Article
- Sense of coherence or self-efficacy as predictors of health-related quality of life in sickle cell disease patients.Annals of hematology · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
introductionChildren with chronic illnesses and medical complexity (CIMC) require frequent health-care use, thereby increasing medical care costs. We evaluated parent-child perceptions of self-management, self-efficacy, and health-related quality of life (HRQOL) in children with CIMC.
methodParent-children pairs (n = 32) completed three measures before discharge from the hospital (Patient Activation Measure, Self-Efficacy Scale, and Acute Care-Pediatric Quality of Life for Children 8-12 and 13-17 years).
resultsParents (56.3%) and children (40.6%) reported moderate levels of self-management. HRQOL was correlated with both self-management (r = .441, p = .12) and self-efficacy (r = .464, p = .008). At least 25% to 50% reported low PedsQL subscale scores (< 70), which indicate problems with physical, emotional, social, and mental domains. DISCUSSION: Our findings support the assessment of not only physical but also mental, emotional, and social needs in children with CIMC. We recommend development and testing strategies promoting self-management and self-efficacy to maximize HRQOL and improve health outcomes in children with CIMC.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.