Evidence map›Paper›PMID 32099665›Full record

ArticleResearch involvement and engagement2020

Development and formative evaluation of patient research partner involvement in a multi-disciplinary European translational research project.

Rebecca Birch, Gwenda Simons, Heidi Wähämaa, Catherine M McGrath, Eva C Johansson, Diana Skingle, Kerin Bayliss, Bella Starling, Danielle M Gerlag, Christopher D Buckley and 3 more

Open access · goldAbstract read
In one paragraph

Article in Research involvement and engagement, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
26citing papers in PubMed, 1 pooled it
9.7field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

26 citing papers in PubMed, 1 synthesis or guideline pooled it, 53 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Navigating Long-Term Co-Creative Research With Young Adults Diagnosed With Cancer: A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. The Importance of Lived Experience: A Scoping Review on the Value of Patient and Public Involvement in Health Research.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  11. Article
  12. Article
  13. Article
  14. Perspectives of researchers and clinicians on patient and public involvement (PPI) in preclinical spinal cord research: An interview study.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  15. Article
  16. Article
  17. Review
  18. Article
  19. Applying Patient and Public Involvement in preclinical research: A co-created scoping review.Health expectations : an international journal of public participation in health care and health policy · 2022
    Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 7 institutions in 3 countries.

Rebecca Birch1Institute of Inflammation and Ageing, College of Medical and Dental Sciences, University of Birmingham, Birmingham, B15 2TT UK.
Gwenda Simons1Institute of Inflammation and Ageing, College of Medical and Dental Sciences, University of Birmingham, Birmingham, B15 2TT UK.
Heidi Wähämaa2Rheumatology Unit, Department of Medicine, Karolinska University Hospital and Karolinska Institutet, SE-171 76 Stockholm, Sweden.
Catherine M McGrath1Institute of Inflammation and Ageing, College of Medical and Dental Sciences, University of Birmingham, Birmingham, B15 2TT UK.
Eva C JohanssonEuroTEAM Patient Research Partners, Stockholm, Sweden.
Diana SkingleEuroTEAM Patient Research Partners, Stockholm, Sweden.
Kerin Bayliss6Public Programmes Team, Central Manchester University Hospitals NHS Foundation Trust, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK.
Bella Starling6Public Programmes Team, Central Manchester University Hospitals NHS Foundation Trust, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK.
Danielle M Gerlag7Department of Clinical Immunology and Rheumatology, Amsterdam Rheumatology and Immunology Centre, Academic Medical Centre/University of Amsterdam, Amsterdam, Netherlands.
Christopher D Buckley1Institute of Inflammation and Ageing, College of Medical and Dental Sciences, University of Birmingham, Birmingham, B15 2TT UK.
Rebecca J Stack11Division of Psychology, School of Social Sciences, Nottingham Trent University, Nottingham, NG1 4BU UK.
Karim Raza1Institute of Inflammation and Ageing, College of Medical and Dental Sciences, University of Birmingham, Birmingham, B15 2TT UK.
Marie Falahee1Institute of Inflammation and Ageing, College of Medical and Dental Sciences, University of Birmingham, Birmingham, B15 2TT UK.ORCID 0000-0001-5928-486X
Sandwell & West Birmingham Hospitals NHS Trust · GBUniversity of Birmingham · GBEuropean and American Osteosarcoma Study Group · GBManchester Academic Health Science Centre · GBHexcel (United Kingdom) · GBKarolinska University Hospital · SENottingham Trent University · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

plain english summaryPatient and public involvement (PPI) improves the quality of health research and ensures that research is relevant to patients' needs. Though PPI is increasingly evident in clinical and health services research, there are few examples in the research literature of effective PPI in translational and laboratory-based research. In this paper, we describe the development and evaluation of PPI in a multi-centre European project (EuroTEAM - ABSTRACT:

Indexed as

EvaluationPatient and public involvementTranslational research

Identifiers

PMID32099665
PMCPMC7031919
OpenAlexW3009904241

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.