Evidence map›Paper›PMID 32098745›Full record

ArticlePatient education and counseling2020

"Hopes and wishes": Goals of high-need, high-cost older patients and their caregivers.

Mary F Wyman, Daniel Liebzeit, Corrine I Voils, Barbara J Bowers, Elizabeth N Chapman, Andrea Gilmore-Bykovskyi, Korey A Kennelty, Amy J H Kind, Julia Loosen, Nicole Rogus-Pulia and 1 more

Abstract read
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In one paragraph

Article in Patient education and counseling, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Article
  4. Article
  5. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Mary F WymanGeriatrics Research, Education and Clinical Center (GRECC), W.S. Middleton Memorial Veterans Hospital, Madison, WI, USA; University of Wisconsin School of Medicine and Public Health, Madison, WI, USA. Electronic address: mfwyman@wisc.edu.
Daniel LiebzeitGeriatrics Research, Education and Clinical Center (GRECC), W.S. Middleton Memorial Veterans Hospital, Madison, WI, USA; School of Nursing, University of Wisconsin, Madison, WI, USA. Electronic address: daniel.liebzeit@wisc.edu.
Corrine I VoilsUniversity of Wisconsin School of Medicine and Public Health, Madison, WI, USA; Research Service, W.S. Middleton Memorial Veterans Hospital, Madison, WI, USA. Electronic address: voils@surgery.wisc.edu.
Barbara J BowersSchool of Nursing, University of Wisconsin, Madison, WI, USA. Electronic address: bjbowers@wisc.edu.
Elizabeth N ChapmanUniversity of Wisconsin School of Medicine and Public Health, Madison, WI, USA; Geriatrics Research, Education and Clinical Center (GRECC), W.S. Middleton Memorial Veterans Hospital, Madison, WI, USA. Electronic address: EChapman@uwhealth.org.
Andrea Gilmore-BykovskyiSchool of Nursing, University of Wisconsin, Madison, WI, USA; University of Wisconsin School of Medicine and Public Health, Madison, WI, USA; Geriatrics Research, Education and Clinical Center (GRECC), W.S. Middleton Memorial Veterans Hospital, Madison, WI, USA. Electronic address: algilmore@wisc.edu.
Korey A KenneltyCarver College of Medicine, University of Iowa, Iowa City, IA, USA. Electronic address: korey-kennelty@uiowa.edu.
Amy J H KindUniversity of Wisconsin School of Medicine and Public Health, Madison, WI, USA; Geriatrics Research, Education and Clinical Center (GRECC), W.S. Middleton Memorial Veterans Hospital, Madison, WI, USA; Health Services and Care Research Program, Department of Medicine, University of Wisconsin, Madison, WI, USA. Electronic address: ajk@medicine.wisc.edu.
Julia LoosenUniversity of Wisconsin School of Medicine and Public Health, Madison, WI, USA. Electronic address: jloosen@wisc.edu.
Nicole Rogus-PuliaUniversity of Wisconsin School of Medicine and Public Health, Madison, WI, USA; Geriatrics Research, Education and Clinical Center (GRECC), W.S. Middleton Memorial Veterans Hospital, Madison, WI, USA. Electronic address: npulia@wisc.edu.
Melissa DattaloUniversity of Wisconsin School of Medicine and Public Health, Madison, WI, USA; Geriatrics Research, Education and Clinical Center (GRECC), W.S. Middleton Memorial Veterans Hospital, Madison, WI, USA. Electronic address: MDattalo@uwhealth.org.

Funding

University of Wisconsin Institute for Clinical and Translational ResearchUL1TR002373 · NCATS · UNIVERSITY OF WISCONSIN-MADISON · PI ELIZABETH S BURNSIDE, Allan R. Brasier · 2017 to 2026
$75.9M
Wisconsin Alzheimer's Disease Research CenterP30AG062715 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI Dorothy Farrar Edwards · 2019 to 2026
$34.5M
Neighborhood Socioeconomic Contextual Disadvantage and Alzheimer's DiseaseRF1AG057784 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI BENDLIN, BARBARA BRIGITTA, KIND, AMY J. · 2017 to 2017
$3.8M
Novel Approaches to Identifying and Engaging Disadvantaged Patients with Alzheimer’s Disease (AD) in Clinical ResearchK76AG060005 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI GILMORE-BYKOVSKYI, ANDREA L · 2018 to 2022
$1.1M
Novel Therapeutic Interventions for Patients with Alzheimer's Disease and Comorbid DysphagiaK23AG057805 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI ROGUS-PULIA, NICOLE M · 2018 to 2020
$504k
NCATS NIH HHS UL1 TR002373NIA NIH HHS K23 AG057805NIA NIH HHS K76 AG060005NIA NIH HHS P30 AG062715NIA NIH HHS RF1 AG057784
6 · The paper itself

Abstract

objectiveIntegration of patient-identified goals is a critical element of shared decision-making and patient-provider communication. There is limited information on the goals of patients with multiple medical conditions and high healthcare utilization. We aimed to identify and categorize the goals described by "high-need, high-cost" (HNHC) older patients and their caregivers.

methodsUsing conventional content analysis, we used data from interviews conducted with 17 HNHC older patients (mean age 72.5 years) and 4 caregivers.

resultsHNHC older patients and their caregivers used language such as "hopes, wishes, and wants" to describe their goals, which fell into eight categories: alleviating discomfort, having autonomy and control, decreasing treatment burden, maintaining physical functioning and engagement, leaving a legacy, extending life, having satisfying and effective relationships, and experiencing security.

conclusionOur results contribute to knowledge of goals of HNHC patients and provides guidance for improving the patient-provider relationship and communication between HNHC older patients and their healthcare providers. PRACTICE IMPLICATIONS: Our findings can inform provider efforts to assess patient goals and engage high-need, high-cost older patients in shared decision-making. Further, this study contributes to an improved understanding of HNHC older patients to support continued development of effective care models for this population.

Indexed as

CaregiversGoalsAgedCommunicationDecision Making, SharedHealth PersonnelHumansCaregiversHigh-Need high-costMultimorbidityOlder adultsPatient goals

Identifiers

PMID32098745
PMCPMC7286795

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.