Evidence map›Paper›PMID 32096225›Full record

ArticleEpilepsia2020

Quantitative readability analysis of websites providing information on traumatic brain injury and epilepsy: A need for clear communication.

Daniel José Correa, Lindsey Milano, Churl-Su Kwon, Nathalie Jetté, Dennis Dlugos, Lauren Harte-Hargrove, Mary Jo Pugh, Jessica K Smith, Solomon L Moshé

Open access · greenAbstract read
In one paragraph

Article in Epilepsia, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
1.2field-weighted citation impact, top 16% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 19 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 5 institutions in 1 country.

Daniel José CorreaSaul R. Korey Department of Neurology, Albert Einstein College of Medicine and Montefiore Medical Center, Bronx, New York.ORCID 0000-0002-6490-9331
Lindsey MilanoUniversity of North Carolina Wilmington, Wilmington, North Carolina.
Churl-Su KwonDepartment of Neurology, Icahn School of Medicine at Mount Sinai, New York, New York.
Nathalie JettéDepartment of Neurology, Icahn School of Medicine at Mount Sinai, New York, New York.
Dennis DlugosDivision of Neurology, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania.
Lauren Harte-HargroveCitizens United for Research in Epilepsy, Chicago, Illinois.
Mary Jo PughVA Salt Lake City Health Care System and the University of Utah School of Medicine, Salt Lake City, Utah.
Jessica K SmithLiving Well With Epilepsy, Philadelphia, Pennsylvania.
Solomon L MoshéSaul R. Korey Department of Neurology, Dominick P. Purpura Department of Neuroscience, and Department of Pediatrics, Albert Einstein College of Medicine and Montefiore Medical Center, Bronx, New York.ORCID 0000-0001-9427-9476
Albert Einstein College of Medicine · USIcahn School of Medicine at Mount Sinai · USChildren's Hospital of Philadelphia · USUniversity of North Carolina Wilmington · USUniversity of Utah · US

Funding

CTSA Administrative Supplement for Informatics Core: A novel AI/ML system to predict respiratory failure and ARDS in Covid-19 patientsUL1TR002556 · NCATS · ALBERT EINSTEIN COLLEGE OF MEDICINE, INC · PI KELLER, MARLA J, KIM, MIMI Y · 2018 to 2022
$26.7M
The Epilepsy Bioinformatics Study for Antiepileptogenic Therapy (EpiBioS4Rx) Public Engagement CoreU54NS100064 · NINDS · UNIVERSITY OF SOUTHERN CALIFORNIA · PI TOGA, ARTHUR W · 2017 to 2021
$21.7M
Consequences of Prolonged Febrile Seizures in ChildhoodR01NS043209 · NINDS · MONTEFIORE MEDICAL CENTER (BRONX, NY) · PI SHINNAR, SHLOMO · 2003 to 2012
$21.5M
Core-010UL1TR001073 · NCATS · ALBERT EINSTEIN COLLEGE OF MEDICINE, INC · PI KELLER, MARLA J, SHAMOON, HARRY · 2013 to 2017
$21.3M
Consequences of Prolonged Febrile Seizures in ChildhoodR37NS043209 · NINDS · ALBERT EINSTEIN COLLEGE OF MEDICINE, INC · PI SHINNAR, SHLOMO · 2013 to 2019
$11.4M
Mount Sinai Network of Excellence in Neuroscience Clinical TrialsU24NS107201 · NINDS · ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI · PI JETTE, NATHALIE, MILLER, AARON · 2018 to 2022
$1.7M
NCATS NIH HHS UL1 TR001073NCATS NIH HHS UL1 TR002556NINDS NIH HHS R01 NS043209NINDS NIH HHS R37 NS043209NINDS NIH HHS U24 NS107201NINDS NIH HHS U54 NS100064
6 · The paper itself

Abstract

objectiveThe use of the Internet for health-related questions is increasing, but it is not clear whether individuals can understand the information available online. Most health organizations recommend that health educational materials (HEMs) be written below the sixth grade reading level. This study was designed to evaluate the readability level of available online HEMs pertaining to traumatic brain injury (TBI), epilepsy, and posttraumatic epilepsy (PTE).

methodsThis cross-sectional readability assessment included HEMs from TBI and epilepsy stakeholder organizations and those obtained from four Internet searches. The search strategy was designed to replicate a nonmedical individual's keyword searches. Each HEM was assessed with an online automated readability tool using three indices (Flesch Reading Ease Score, Flesch-Kincaid Grade Level, and Simple Measure of Gobbledygook). Findings were compared as a function of organization type (journalistic news or health organization), targeted medical condition (TBI, epilepsy, or PTE), or content topic (patient health education, clinical research education, or both).

resultsReadability analysis of 405 identified HEMs revealed scores above the sixth grade reading level recommendation. Only 6.2% of individual HEMs met the sixth grade recommendation. Journalistic news organizations' HEMs had similar readability levels to health organizations' HEMs. PTE-related HEMs required the highest readability level, >11th grade (P < .001). There were significant differences in the readability scores (P < .01 for all indices) among HEMs with information on health education, research education, or both topics. The highest required readability level (>12 grade level) was for HEMs that included both health and research education. SIGNIFICANCE: The majority of TBI-, epilepsy-, and PTE-related online HEMs do not meet the sixth grade reading recommendation. Improving the readability of HEMs may advance health literacy around TBI, epilepsy, and PTE, leading to more effective participant recruitment/retention strategies for future antiepileptogenesis trials in persons with TBI and perhaps better patient-centered outcomes.

Indexed as

Brain Injuries, TraumaticComprehensionConsumer Health InformationEpilepsyEpilepsy, Post-TraumaticInternetCenters for Disease Control and Prevention, U.S.HumansMedlinePlusSocieties, MedicalUnited StatesUnited States Department of Veterans Affairscommunity healthhealth literacyplain languageposttraumatic epilepsyreadability

Identifiers

PMID32096225
PMCPMC7309702
OpenAlexW3007880964

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.