ArticleDeath studies2022
If we knew then what we know now: The preparedness experience of pre-loss and post-loss dementia caregivers.
Article in Death studies, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 33 citations in OpenAlex.
- Loss and Grief in the Context of Dementia Caregiving.Journal of psychosocial nursing and mental health services · 2022Trial
- Anticipatory grief among caregivers of people living with dementia: A scoping review.Palliative & supportive care · 2026Article
- Digital Reminiscence Therapy for Caregivers of Family Members With Dementia.JAMA network open · 2026Article
- Article
- The relationship between symptom severity of palliative care patients and caregiver readiness and strain levels.BMC palliative care · 2026Article
- Meaning making during bereavement as part of caregiver speaks, a narrative photo-elicitation intervention for Caregivers of persons living with dementia.Dementia (London, England) · 2026Article
- Choice, struggle, and resilience: the experience of pre-loss grief among Chinese family caregivers of cancer patients.BMC palliative care · 2025Article
- Article
- 'Regrets become a lasting source of pain': A qualitative study on family caregivers' experiences leading up to a relative's death.Palliative medicine · 2025Article
- Dying in residential care homes during the early COVID-19 pandemic: a qualitative interview study.BMC geriatrics · 2025Article
- 'A good ending but not the end': Exploring family preparations surrounding a relative's death and the Afterlife - A qualitative study.Palliative medicine · 2024Article
- The Relationship Between Preparedness for Caregiving and Spiritual Well-Being in the Carers of Stroke Patients: A Case Study in Türkiye.Journal of religion and health · 2024Article
- Validation of a Measure of Role Overload and Gains for End-of-Life Dementia Caregivers.The journals of gerontology. Series B, Psychological sciences and social sciences · 2023Article
- Practical and emotional preparation for death: A mixed methods study investigating experiences of family carers of people with dementia.Dementia (London, England) · 2022Article
- Lived Experiences of Family Members of Patients With Severe COVID-19 Who Died in Intensive Care Units in France.JAMA network open · 2021Article
- Pre-loss group therapy for dementia family care partners at risk for complicated grief.Alzheimer's & dementia (New York, N. Y.) · 2021Article
- Supporting families in end-of-life care and bereavement in the COVID-19 era.International psychogeriatrics · 2020Article
- Former dementia caregivers' high and low point narratives: what is remembered, and how is it shared?Aging & mental healthArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 1 institution in 1 country.
Funding
Abstract
We evaluated the relationship between grief preparedness and grief experience in 106 family caregivers anticipating or who had experienced the death of a family member with dementia. Using a phenomenological lens to discern a process of meaning-making in narratives, we found preparation that included positive construction of memories, death as the end of suffering, relationship resolution, and shared construction of meaning were associated with positive grief. Those caregivers who experienced the family member's decline as traumatic, caregiver role loss, unavailable support, and difficulties creating a new life reported inadequate death preparation, and difficulty making meaning of the illness and death.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.