Evidence map›Paper›PMID 32093099›Full record

SynthesisInternational journal of environmental research and public health2020

Voices behind the Statistics: A Systematic Literature Review of the Lived Experience of Rheumatic Heart Disease.

Emma Haynes, Alice Mitchell, Stephanie Enkel, Rosemary Wyber, Dawn Bessarab

Open access · goldAbstract readSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in International journal of environmental research and public health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed, 1 pooled it
4.9field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

21 citing papers in PubMed, 1 synthesis or guideline pooled it, 35 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Epigenetic advances in rheumatic heart disease.Journal of translational autoimmunity · 2025
    Review
  6. Article
  7. Article
  8. Article
  9. Review
  10. Secondary Prophylaxis Among First Nations People With Acute Rheumatic Fever in Australia: An Integrative Review.Journal of transcultural nursing : official journal of the Transcultural Nursing Society · 2023
    Review
  11. Article
  12. Tuberculosis care designed with barramarrany (family): Participatory action research that prioritised partnership, healthy housing and nutrition.Health promotion journal of Australia : official journal of Australian Association of Health Promotion Professionals · 2022
    Article
  13. Article
  14. Living with Rheumatic Heart Disease at the Intersection of Biomedical and Aboriginal Worldviews.International journal of environmental research and public health · 2022
    Article
  15. Article
  16. Article
  17. Article
  18. Article
  19. The Global Impact of Rheumatic Heart Disease.Current cardiology reports · 2021
    Review
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 3 institutions in 1 country.

Emma HaynesSchool of Population and Global Health, The University of Western Australia, Perth 6000, Australia.
Alice MitchellMenzies School of Health Research, Charles Darwin University, Darwin 0810, Australia.
Stephanie EnkelTelethon Kids Institute, 6000 Perth, Australia.
Rosemary WyberTelethon Kids Institute, 6000 Perth, Australia.
Dawn BessarabCentre for Aboriginal Medical and Dental Health, The University of Western Australia, Perth 6000, Australia.
The Kids Research Institute Australia · AUCharles Darwin University · AUThe University of Western Australia · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

In Australia, Aboriginal children almost entirely bear the burden of acute rheumatic fever (ARF) which often leads to rheumatic heart disease (RHD), a significant marker of inequity in Indigenous and non-Indigenous health experiences. Efforts to eradicate RHD have been unsuccessful partly due to lack of attention to voices, opinions and understandings of the people behind the statistics. This systematic review presents a critical, interpretive analysis of publications that include lived experiences of RHD. The review approach was strengths-based, informed by privileging Indigenous knowledges, perspectives and experiences, and drawing on Postcolonialism and Critical Race Theory. Fifteen publications were analysed. Nine themes were organised into three domains which interact synergistically: sociological, disease specific and health service factors. A secondary sociolinguistic analysis of quotes within the publications articulated the combined impact of these factors as 'collective trauma'. Paucity of qualitative literature and a strong biomedical focus in the dominant narratives regarding RHD limited the findings from the reviewed publications. Noteworthy omissions included: experiences of children/adolescents; evidence of Indigenous priorities and perspectives for healthcare; discussions of power; recognition of the centrality of Indigenous knowledges and strengths; and lack of critical reflection on impacts of a dominant biomedical approach to healthcare. Privileging a biomedical approach alone is to continue colonising Indigenous healthcare.

Indexed as

Rheumatic FeverRheumatic Heart DiseaseAdolescentAustraliaChildHumansadolescentcollective traumaIndigenouslived experiencepowerrheumatic heart diseasestrengths-based

Identifiers

PMID32093099
PMCPMC7068492
OpenAlexW3007603341

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.