Evidence map›Paper›PMID 32088880›Full record

ArticleJournal of community genetics2020

Quality of life and comprehensive health supervision for children with Down syndrome in Thailand.

Kitiwan Rojnueangnit, Penrawee Khaosamlee, Issarapa Chunsuwan, Nattariya Vorravanpreecha, Tanayoot Lertboonnum, Rungrote Rodjanadit, Pak Sriplienchan

Open access · bronzeAbstract read
In one paragraph

Article in Journal of community genetics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 2 pooled it
2.9field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 2 syntheses or guidelines pooled it, 25 citations in OpenAlex.

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  13. Family Variables and Quality of Life in Children with Down Syndrome: A Scoping Review.International journal of environmental research and public health · 2021
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 1 institution in 1 country.

Kitiwan RojnueangnitDepartment of Pediatrics, Faculty of Medicine, Thammasat University, 99 Moo 18 Phahonyothin Road, Khlong Luang, Pathumthani, 12120, Thailand. rkitiwan@tu.ac.th.ORCID http://orcid.org/0000-0002-9488-4470
Penrawee KhaosamleeDepartment of Pediatrics, Faculty of Medicine, Thammasat University, 99 Moo 18 Phahonyothin Road, Khlong Luang, Pathumthani, 12120, Thailand.
Issarapa ChunsuwanDepartment of Pediatrics, Faculty of Medicine, Thammasat University, 99 Moo 18 Phahonyothin Road, Khlong Luang, Pathumthani, 12120, Thailand.
Nattariya VorravanpreechaFaculty of Medicine, Thammasat University, Bangkok, Thailand.
Tanayoot LertboonnumFaculty of Medicine, Thammasat University, Bangkok, Thailand.
Rungrote RodjanaditFaculty of Medicine, Thammasat University, Bangkok, Thailand.
Pak SriplienchanFaculty of Medicine, Thammasat University, Bangkok, Thailand.
Thammasat University · TH

Funding

Thammasat University 12/2559
6 · The paper itself

Abstract

Children with Down syndrome often require several specialty doctors and multidisciplinary teams for their associated anomalies. This may impact their quality of life and creates gaps in treatment monitoring. No studies have yet been conducted in Thailand to measure their quality of life and level of comprehensive health supervision. Therefore, we aimed to study the quality of life among children with Down syndrome and determine if they receive comprehensive health supervision for their condition. In this descriptive research, data were collected from a medical record review of children with Down syndrome during a 1-year period in our Pediatric Outpatient Clinic; 50 children and 39 caregivers participated. Mean total quality of life score of the children was 67.9/100 points. The children had the highest scores (73.6 ± 12.8) in emotional functioning and the lowest (57.2 ± 25.6) in cognitive functioning. It appears that the quality of life may be lower in Down syndrome patients than in Thai children without it. Regarding health supervision, all 50 were screened for thyroid function, and 48 received cardiac evaluations. However, only 17 (34%) received "complete basic assessment" of 5 screening combinations with developmental evaluations and growth monitoring. Furthermore, none received "comprehensive" evaluations for all recommended conditions. While these findings show a need for health supervision improvement for children with Down syndrome within our hospital, they may also be indicative for most care facilities throughout Thailand.

Indexed as

Children with Down syndromeComprehensive careHealth supervisionQuality of life

Identifiers

PMID32088880
PMCPMC7295893
OpenAlexW3007508876

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.