ArticleOrphanet journal of rare diseases2020
Lack of knowledge and misperceptions about thalassaemia among college students in Bangladesh: a cross-sectional baseline study.
Article in Orphanet journal of rare diseases, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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16 citing papers in PubMed, 45 citations in OpenAlex.
- Thalassaemia.Nature reviews. Disease primers · 2026Review
- Genetic blood disorder status awareness and factors influencing willingness or reluctance to undergo premarital screening among young adults in Ahafo Region, Ghana: a cross-sectional survey.Journal of health, population, and nutrition · 2026Article
- Knowledge, attitudes, and perceptions towards premarital screening among undergraduate university students in Chattogram district, Bangladesh: a cross-sectional study.BMC public health · 2026Article
- Lack of knowledge of thalassemia among non-medical university students in Saudi Arabia: a cross-sectional study.Frontiers in public health · 2026Article
- From misconceptions to empowerment: assessing health and genetic literacy on thalassemia among Tunisian secondary school students.BMC public health · 2025Article
- Genetic self-counselors in Tunisia: the role of health education in hemoglobinopathies prevention among high school students.Orphanet journal of rare diseases · 2025Article
- Thalassemia in Bangladesh: progress, challenges, and a strategic blueprint for prevention.Orphanet journal of rare diseases · 2025Review
- Knowledge and attitudes of thalassaemia among high-risk indigenous university students in Bangladesh: A pilot study.PloS one · 2023Article
- Review
- Article
- Exploring the Gap Between Knowledge and Behavior Regarding Thalassemia Among University Students: A Cross-Sectional Study in the United Arab Emirates.Journal of community health · 2022Article
- The scenario of knowledge, attitude and practice of the Bangladeshi population towards thalassemia prevention: A nationwide study.PLOS global public health · 2022Article
- Cross-sectional study on knowledge, attitude and practice towards thalassaemia among Indonesian youth.BMJ open · 2021Observational
- The parental perspective of thalassaemia in Bangladesh: lack of knowledge, regret, and barriers.Orphanet journal of rare diseases · 2021Article
- The forgotten people with thalassemia in the time of COVID-19: South Asian perspective.Orphanet journal of rare diseases · 2020Article
- Prevalence of hypogonadism in transfusion-dependent β-thalassemia patients of Bangladesh: investigating the role of serum ferritin level as a diagnostic tool.Hematology, transfusion and cell therapyArticle
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8 authors at 4 institutions in 2 countries.
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No grant is acknowledged in the PubMed record.
Abstract
backgroundThalassaemia is a potentially life-threatening yet preventable inherited hemoglobin disorder. Understanding local socio-cultural context and level of public awareness about thalassaemia is pivotal for selecting effective prevention strategies. This study attempted to assess knowledge and perceptions about thalassaemia among college students in Bangladesh.
methodsA supervised cross-sectional survey was conducted on 1578 college students using a self-administered structured questionnaire. The survey took place from 15 February 2018 to 17 March 2018 in the Jamalpur district in Bangladesh. Besides the attitude-related questions, the study asked a total of 12 knowledge-related questions, which were scored on a scale of 0-12 points.
resultsOver two-thirds (67%) of the college students had never heard of thalassaemia. The urban-rural dichotomy was observed among those familiar with the term; (46.4% from urban vs. 25.8% from rural colleges). A similar pattern was observed for knowledge score; 5.07 ± 1.87 for students from the urban colleges compared to 3.69 ± 2.23 for rural colleges. Students from the science background had the highest knowledge score (5.03 ± 1.85), while those from arts and humanities background scored lowest (3.66 ± 2.3). Nearly 40% of the students were not sure or did not want to be a friend of a thalassaemia patient. Whereas 39% either declined or remained hesitant about helping thalassaemia patients by donating blood. However, most of the respondents (88%) showed a positive attitude towards 'premarital' screening to prevent thalassaemia.
conclusionsThis study has identified critical knowledge gaps and societal misperceptions about thalassaemia. A better understanding of these aspects will be pivotal for disseminating thalassaemia related information. As the first study of this kind in Bangladesh, findings from this study has generated baseline data that would contribute to developing effective intervention strategies in Bangladesh and other countries with a comparable socio-cultural setting.
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