Evidence map›Paper›PMID 32077841›Full record

ArticleHealthcare policy = Politiques de sante2019

What Is Missing from "Patient-Oriented Research?" A View from Public Health Systems and Services.

Bernadette Pauly, Karen Urbanoski, Elizabeth Hartney, Sana Shahram, Lenora Marcellus, Bruce Wallace, Marjorie Macdonald, Trevor Hancock

Abstract read
In one paragraph

Article in Healthcare policy = Politiques de sante, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed.

  1. Article
  2. CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2025
    Article
  3. Critical patient-oriented research: a fundamental shift in patient engagement.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2025
    Article
  4. Review
  5. Article
  6. Article
  7. Article
  8. Article
  9. The dynamic nature of patient engagement within a Canadian patient-oriented kidney health research network: Perspectives of researchers and patient partners.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Bernadette PaulyProfessor, School of Nursing and Scientist, Canadian Institute for Substance Use Research, University of Victoria, Victoria, BC.
Karen UrbanoskiAssistant Professor, School of Public Health and Social Policy, University of Victoria, Scientist, Canadian Institute for Substance Use Research, Victoria, BC.
Elizabeth HartneyProfessor, School of Leadership Studies, Royal Roads University, Victoria, BC.
Sana ShahramAdjunct Professor, School of Public Health & Social Policy, University of Victoria, Victoria, BC, Assistant Professor, Nursing, University of British Columbia, Okanagan, Kelowna, BC.
Lenora MarcellusAssociate Professor, School of Nursing, University of Victoria, Victoria, BC.
Bruce WallaceAssociate Professor, School of Social Work, University of Victoria, Scientist, Canadian Institute for Substance Use Research, Victoria, BC.
Marjorie MacdonaldProfessor, School of Nursing, University of Victoria, Victoria, BC.
Trevor HancockRetired Professor and Senior Scholar, School of Public Health and Social Policy, University of Victoria, Victoria, BC.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Patient-oriented research (POR) aims to increase patient engagement in health research to improve health research and health services. In Canada, the Strategies for Patient-Oriented Research (SPOR) framework provides guidance for conducting POR. We critically review the SPOR framework through the lens of public health systems and services research. The SPOR framework is primarily focused on engaging individual patients in health research without attention to broader structural forces that shape health and participation in healthcare systems. Shifting from patient to public involvement and from patient to community engagement and being explicit about the range of health research that SPOR encompasses would enhance the framework and strengthen the potential of SPOR to improve health systems through health protection, promotion and prevention of disease and injury.

Indexed as

Research DesignCanadaCommunity ParticipationHealth Services ResearchHumansPatient ParticipationPublic Health

Identifiers

PMID32077841
PMCPMC7020799

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.