Evidence map›Paper›PMID 32076566›Full record

SynthesisOpen heart2020

Cardiac arrest and sudden cardiac death registries: a systematic review of global coverage.

Elizabeth Davida Paratz, Luke Rowsell, Dominica Zentner, Sarah Parsons, Natalie Morgan, Tina Thompson, Paul James, Andreas Pflaumer, Christopher Semsarian, Karen Smith and 3 more

Abstract readSystematic Review
In one paragraph

Synthesis in Open heart, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 42 papers.

0numbers the graph read from it
0cells of the map it votes in
42citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

42 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
  4. Article
  5. Review
  6. Article
  7. The competency of nurses in basic life support at district hospitals in Cape Town, South Africa.South African family practice : official journal of the South African Academy of Family Practice/Primary Care · 2025
    Observational
  8. Article
  9. From rare events to systematic data collection: the RESCUED registry for sudden cardiac death in the young in Germany.Clinical research in cardiology : official journal of the German Cardiac Society · 2025
    Article
  10. Review
  11. Article
  12. Review
  13. Review
  14. Article
  15. Article
  16. Article
  17. Article
  18. Review
  19. Review
  20. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

13 authors.

Elizabeth Davida ParatzBaker Heart Research Institute - BHRI, Melbourne, Victoria, Australia.ORCID 0000-0002-2122-9889
Luke RowsellBaker Heart Research Institute - BHRI, Melbourne, Victoria, Australia.
Dominica ZentnerDepartment of Medicine, University of Melbourne, Melbourne, Victoria, Australia.
Sarah ParsonsVictorian Institute of Forensic Medicine, Southbank, Victoria, Australia.
Natalie MorganVictorian Institute of Forensic Medicine, Southbank, Victoria, Australia.
Tina ThompsonDepartment of Cardiology, Royal Melbourne Hospital, Melbourne, Victoria, Australia.
Paul JamesDepartment of Cardiology, Royal Melbourne Hospital, Melbourne, Victoria, Australia.
Andreas PflaumerDepartment of Cardiology, Royal Childrens Hospital Melbourne, Parkville, Victoria, Australia.ORCID 0000-0002-3830-3643
Christopher SemsarianCentenary Institute, Sydney, New South Wales, Australia.
Karen SmithResearch & Evaluation, Ambulance Victoria, Blackburn North, Victoria, Australia.
Dion StubCardiology, The Alfred Hospital, Melbourne, VIC, Australia.ORCID 0000-0001-8686-2709
Andre La GercheBaker Heart Research Institute - BHRI, Melbourne, Victoria, Australia.
Australian UCDP Registry

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Sudden cardiac death (SCD) is a major global health problem, accounting for up to 20% of deaths in Western societies. Clinical quality registries have been shown in a range of disease conditions to improve clinical management, reduce variation in care and improve outcomes. Aim: To identify existing cardiac arrest (CA) and SCD registries, characterising global coverage and methods of data capture and validation. Methods: Biomedical and public search engines were searched with the terms 'registry cardio*'; 'sudden cardiac death registry' and 'cardiac arrest registry'. Registries were categorised as either CA, SCD registries or 'other' according to prespecified criteria. SCD registry coordinators were contacted for contemporaneous data regarding registry details. Results: Our search strategy identified 49 CA registries, 15 SCD registries and 9 other registries (ie, epistries). Population coverage of contemporary CA and SCD registries is highly variable with registries densely concentrated in North America and Western Europe. Existing SCD registries (n=15) cover a variety of age ranges and subpopulations, with some enrolling surviving patients (n=8) and family members (n=5). Genetic data are collected by nine registries, with the majority of these (n=7) offering indefinite storage in a biorepository. Conclusions: Many CA registries exist globally, although with inequitable population coverage. Comprehensive multisource surveillance SCD registries are fewer in number and more challenging to design and maintain. Challenges identified include maximising case identification and case verification. Trial registration number: CRD42019118910.

Indexed as

Data AccuracyData MiningEvidence-Based MedicineGlobal HealthRegistriesAdolescentAdultAgedAged, 80 and overChildChild, PreschoolDeath, Sudden, CardiacFemaleHeart ArrestHumansInfantemergency medicineepidemiologyresuscitationsudden cardiac death

Identifiers

PMID32076566
PMCPMC6999684

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.