Evidence map›Paper›PMID 32074396›Full record

SynthesisHealth expectations : an international journal of public participation in health care and health policy2020

The views and experiences of patients and health-care professionals on the disclosure of adverse events: A systematic review and qualitative meta-ethnographic synthesis.

Raabia Sattar, Judith Johnson, Rebecca Lawton

Abstract readSystematic Review
In one paragraph

Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
19citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

19 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Using an evidence-informed co-design approach to develop a mechanism to measure experiences of the open disclosure process: an Irish case study.International journal for quality in health care : journal of the International Society for Quality in Health Care · 2026
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  4. What Do Consumers Need Before, During and After a Patient Safety Incident Review? A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2026
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  8. A Mixed Methods Evaluation of the Statutory Duty of Candour in Victorian Health Services: Study Protocol.Health expectations : an international journal of public participation in health care and health policy · 2025
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  18. Views of healthcare consumer representatives on defensive practice: 'We are your biggest advocate and supporter… not the enemy'.Health expectations : an international journal of public participation in health care and health policy · 2022
    Article
  19. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Raabia SattarUniversity of Leeds and Bradford Institute for Health Research, Leeds, UK.ORCID 0000-0002-1003-9772
Judith JohnsonUniversity of Leeds and Bradford Institute for Health Research, Leeds, UK.
Rebecca LawtonUniversity of Leeds and Bradford Institute for Health Research, Leeds, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo synthesize the literature on the views and experiences of patients/family members and health-care professionals (HCPs) on the disclosure of adverse events.

methodsSystematic review of qualitative studies. Searches were conducted in MEDLINE, Embase, PubMed, CINAHL and PsycINFO. Study quality was evaluated using the Critical Appraisal Skills Programme tool. Qualitative data were analysed using a meta-ethnographic approach, comprising reciprocal syntheses of 'patient' and 'health-care professional' studies, combined to form a lines-of-argument synthesis embodying both perspectives.

resultsFifteen studies were included in the final syntheses. The results highlighted that there is a difference in attitudes and expectations between patients and HCPs regarding the disclosure conversation. Patients/family members expressed a need for information, the importance of sincere regret and a promise of improvement. However, HCPs faced several barriers, which hindered appropriate disclosure practices. These included difficulty of disclosure in a blame culture, avoidance of litigation, lack of skills on how to conduct disclosure and inconsistent guidance. A lines-of-argument synthesis is presented that identified both the key elements of an ideal disclosure desired by patients and the facilitators for HCPs, which can increase the likelihood of this taking place.

conclusionsAlthough patients/family members and HCPs both advocate disclosure, several barriers prevent HCPs from conducting disclosure effectively. Both groups have different needs for disclosure. To meet patients' requirements, training on disclosure for HCPs and the development of an open, transparent culture within organizations are potential areas for intervention.

Indexed as

DisclosureHealth PersonnelAnthropology, CulturalDissent and DisputesHumansQualitative Researchadverse eventsdisclosurehealth-care professionalsmeta-ethnographypatientsreviewsystematic review

Identifiers

PMID32074396
PMCPMC7321730

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.