ArticleEMBO molecular medicine2020
Genomic data sharing in Europe is stumbling-Could a code of conduct prevent its fall?
Article in EMBO molecular medicine, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Context of data sharing practices in collaborative human genomic research in low and middle income countries: A systematic review.PloS one · 2026Pooled it
- Patient and IRB perspectives on biobank consent models: implications for international policy from Taiwan.BMC medical ethics · 2026Article
- From pancreas and islet resources to diabetes insights.Diabetologia · 2026Review
- Assessing Privacy Vulnerabilities in Genetic Data Sets: Scoping Review.JMIR bioinformatics and biotechnology · 2024Article
- CamPype: an open-source workflow for automated bacterial whole-genome sequencing analysis focused on Campylobacter.BMC bioinformatics · 2023Article
- Data sharing practices in collaborative human genomic research in low- and middle-income countries: A systematic review protocol.PloS one · 2023Article
- Routine omics collection is a golden opportunity for European human research in space and analog environments.Patterns (New York, N.Y.) · 2022Review
- Artificial Intelligence for Radiation Oncology Applications Using Public Datasets.Seminars in radiation oncology · 2022Review
- PatientMatcher: A customizable Python-based open-source tool for matching undiagnosed rare disease patients via the Matchmaker Exchange network.Human mutation · 2022Article
- Apropos Data Sharing: Abandon the Distrust and Embrace the Opportunity.DNA and cell biology · 2022Article
- Deepfakes in Ophthalmology: Applications and Realism of Synthetic Retinal Images from Generative Adversarial Networks.Ophthalmology science · 2021Article
- Linking genome variants to disease: scalable approaches to test the functional impact of human mutations.Human molecular genetics · 2021Review
- Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries.Genome medicine · 2021Article
- The impact of cross-kingdom molecular forensics on genetic privacy.Microbiome · 2021Article
- Recommendations for Creating Codes of Conduct for Processing Personal Data in Biobanking Based on the GDPR art.40.Frontiers in genetics · 2021Article
- Genomic data sharing in Europe is stumbling-Could a code of conduct prevent its fall?EMBO molecular medicine · 2020Article
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Genomic data sharing is becoming more important as scientists join forces across borders in biomedical research for the benefit of patients and society. The EU's General Data Protection Regulation (GDPR) helps simplify sharing of such data at the European and international level. However, initial optimism has dried up as EU member states go their own ways in implementing the GDPR into national laws, and as legal cases challenging data sharing reach courts. Codes of conduct could facilitate data sharing in Europe and better connect it to global health research. This commentary explains the potential of codes of conduct for addressees and drafters. Codes are no panacea though; other measures may be necessary to ensure that Europe remains collaborative and competitive in biomedical research. Nevertheless, codes of conduct would bring immediate benefits and, in the long term, could foster a true European ecosystem for joint biomedical research and easier international data sharing.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.