Evidence map›Paper›PMID 32071040›Full record

ArticleBJGP open2020

Understanding the patient voice in gout: a quantitative study conducted in Europe.

Marc De Meulemeester, Elsa Mateus, Hilda Wieberneit-Tolman, Neil Betteridge, Lucy Ireland, Gudula Petersen, Nina Jeanette Maske, Tim L Jansen, Fernando Perez-Ruiz

Open access · goldAbstract read
In one paragraph

Article in BJGP open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
1.3field-weighted citation impact, top 21% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 12 citations in OpenAlex.

  1. Trial
  2. 'All I Do Is Sit in a Chair Until the Pain Fades'-Experiences of Living With Gout.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  3. Article
  4. Article
  5. Article
  6. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 6 institutions in 7 countries.

Marc De MeulemeesterGP Private Practice, Cabinet Médical Demeulemeester, Gozée, Belgium demeu@brutele.be.
Elsa MateusPresident of the Board of Portuguese League Against Rheumatic Diseases, Liga Portuguesa Contra as Doenças Reumáticas, Lisboa, Portugal.
Hilda Wieberneit-TolmanExecutive Director of PijnPlatform Nederland, Pijn Platform Nederland, Leiden, The Netherlands.
Neil BetteridgeDirector, Neil Betteridge Associates, London, UK.
Lucy IrelandHealth Partner, Hall & Partners, London, UK.
Gudula PetersenDirector Governmental Affairs & Patient Centricity, Grünenthal GmbH, Aachen, Germany.
Nina Jeanette MaskeSenior Manager Market Research & Insights, Department Analytics & Insights, Grünenthal GmbH, Aachen, Germany.
Tim L JansenMedical Leader, Department of Rheumatology, Expert Centre Complex Gout, VieCuri Medical Centre, Venlo, The Netherlands.
Fernando Perez-RuizAssociate Professor, Department of Medicine, Medicine and Nursery School, University of the Basque Country, Cruces, Spain.
Grünenthal Group (Germany) · DECabinet Office · JPExpert System (Italy) · ITPortuguese League Against Epilepsy · PTUniversity of the Basque Country · ESVlaams Patiëntenplatform · BE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAlthough commonly diagnosed, gout often remains a poorly managed disease. This is partially due to a lack of awareness of the long-term effect of gout among patients and healthcare professionals.

aimTo understand unmet needs for patients and provide insight into achieving better treatment. DESIGN &

settingA quantitative online questionnaire collected from 1100 people with gout from 14 countries within Europe.

methodPatients were recruited to complete an online survey via healthcare professional (HCP) referral, patient associations, or market research panels. Patients were included if they had been diagnosed with gout by a physician. Prior to commencement, patients were made aware that this study was sponsored by Grünenthal. The responses collected were collated and analyses were performed.

resultsPatients had an average of 2.9 gout flares within a 12-month period. Although 79% of patients were satisfied with treatment, inadequate gout control was also reported by 71% of patients. Furthermore, 84% experienced moderate-to-severe pain with their most recent flare. Of those who acknowledged treatment dissatisfaction, only 24% discussed other options with their GP. Most patients reported irregular follow-up and serum uric acid (sUA) monitoring. In addition, loss of belief that more can be done was a key barrier for patients.

conclusionPatients reported severe pain and social burden, coupled with low treatment expectation and lack of awareness of target sUA. Education around knowing and reaching sUA target is needed so that patients can receive and GPs can deliver higher quality management.

Indexed as

general practicegoutpainpatient carequality of lifesurveys and questionnairesurateuric acid

Identifiers

PMID32071040
PMCPMC7330181
OpenAlexW3008663070

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.