ArticleThe Gerontologist2020
Conceptual Framework to Guide Intervention Research Across the Trajectory of Dementia Caregiving.
Article in The Gerontologist, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06635876 (Piloting an Online Emergency Preparedness Toolkit for Caregivers Preparing for Their Own Health Care Emergency), which is not on this map. Cited by 46 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Piloting an Online Emergency Preparedness Toolkit for Caregivers Preparing for Their Own Health Care Emergency
Who cites it
46 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Care Partner Engagement in Fall Risk Management Programs for Community-Dwelling Older People with Cognitive Impairment: A Systematic Review.Clinical interventions in aging · 2025Pooled it
- Sleep Interventions for Informal Caregivers of Persons with Dementia: A Systematic Review.Western journal of nursing research · 2022Pooled it
- Gendered experiences of providing informal care for older people: a systematic review and thematic synthesis.BMC health services research · 2021Pooled it
- Supporting Hispanic caregiver subjective health and well-being: a test of user-reactions and preliminary efficacy of a psychoeducational program for Hispanic dementia caregivers.The Gerontologist · 2026Trial
- Health Trajectories of Skilled Nursing Facility Patients With Alzheimer's Disease and Related Dementias: Evidence for Practicing Nurses.Journal of gerontological nursing · 2024Trial
- Assistant Nurses' Experiences of Life Story Documentation: Insights Into the Construction and Application in Dementia Care Practice.Dementia (London, England) · 2026Article
- Domains of Caregiving in Parkinson's Disease: A Framework Developed Through Perspective Mapping.The American journal of hospice & palliative care · 2026Article
- Dementia family carers' needs and wants for technological solutions to their work-care reconciliation challenges: semi-structured interviews.Wiener medizinische Wochenschrift (1946) · 2026Article
- Promoting Adaptation to Caregiving Challenges: A Qualitative Study of Dementia Caregiving Specialists.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Demographic predictors of caregiving and caregiver stress: results from the HCHS/SOL sociocultural ancillary study.The Gerontologist · 2026Article
- Supporting family caregivers: Variations in caregiving among families managing chronic health conditions.The American psychologist · 2025Article
- Caring in the XXI century: the sustainability of long-term care in aging societies-mapping challenges and developing solutions within the Age-It Research Program.The journals of gerontology. Series B, Psychological sciences and social sciences · 2025Article
- Examining Help-Seeking Behavior in People Living Alone With Cognitive Impairment.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- A Comparative Study of Burden of Care, Anxiety, and Well-Being Among Family Caregivers of Elderly with Dementia: Evidence from Kuwait.Healthcare (Basel, Switzerland) · 2025Article
- Information and education for informal dementia caregivers: the Age-it project.Frontiers in public health · 2025Article
- Exploring Social Support Experiences of Caregivers of Persons Living With Dementia in Hospice Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- "How do You Take that Much Time for One Person's Life?" Experiences of Dementia Caregivers Who are Not Immediate Family.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Self-care capacity of informal caregivers of older adults with dementia: quasi-experimental study.Revista latino-americana de enfermagem · 2025Article
- Trauma-informed family carer education and practical skills training in dementia: a systematic scoping review protocol.BMJ open · 2024Article
- Technology that CARES: Enhancing dementia care through everyday technologies.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
This article presents a comprehensive conceptual framework designed to foster research in the changing needs of caregivers and persons with dementia as they move through their illness trajectory. It builds on prior theoretical models and intervention literature in the field, while at the same time addressing notable gaps including inadequate attention to cultural issues; lack of longitudinal research; focus on primary caregivers, almost to the exclusion of the person with dementia and other family members; limited outcome measures; and lack of attention to how the culture of health care systems affects caregivers' quality of life. The framework emphasizes the intersectionality of caregiving, sociocultural factors, health care systems' factors, and dementia care needs as they change across time. It provides a template to encourage longitudinal research on reciprocal relationships between caregiver and care recipient because significant changes in the physical and/or mental health status of one member of the dyad will probably affect the physical and/or mental health of the partner. This article offers illustrative research projects employing this framework and concludes with a call to action and invitation to researchers to test components, share feedback, and participate in continued refinement to more quickly advance evidence-based knowledge and practice in the trajectory of dementia caregiving.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.