Evidence map›Paper›PMID 32048316›Full record

ArticleJournal of advanced nursing2020

The effectiveness of a nurse-led intervention to support family caregivers in end-of-life care: Study protocol for a cluster randomized controlled trial.

Yvonne N Becqué, Judith A C Rietjens, Agnes van der Heide, Erica Witkamp

Open access · hybridAbstract readClinical Trial Protocol
In one paragraph

Article in Journal of advanced nursing, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
0.7field-weighted citation impact, top 26% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 7 citations in OpenAlex.

  1. Trial
  2. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 1 institution in 1 country.

Yvonne N BecquéResearch Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands.ORCID https://orcid.org/0000-0002-9188-9911
Judith A C RietjensDepartment of Public Health, Erasmus University Medical Center Rotterdam, Rotterdam, The Netherlands.
Agnes van der HeideDepartment of Public Health, Erasmus University Medical Center Rotterdam, Rotterdam, The Netherlands.
Erica WitkampResearch Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands.
Erasmus MC · NL

Funding

ZonMw 844001313
6 · The paper itself

Abstract

aimTo evaluate the feasibility of a structured nurse-led supportive intervention and its effects on family caregivers in end-of-life care at home.

backgroundFamily caregivers are crucial in end-of-life care. They may experience burden due to the responsibilities associated with caregiving. Some family caregivers feel insufficiently prepared for their caregiver role. Nurses have a unique position to provide supportive interventions at home to reduce caregivers' burden and improve preparedness. However, few nurse-led interventions are available to support family caregivers in end-of-life care at home.

designWe will perform a cluster randomized controlled trial. The clusters consist of twelve home care services, randomly assigned to the intervention group or the control group.

methodsThe study population consists of family caregivers of patients in the last phase of life. In the intervention group, nurses will systematically assess the supportive needs of family caregivers, using an assessment tool and the method of clinical reasoning. Family members of the control group receive care as usual. Primary outcome is burden measured by the Self-Rated Burden Scale. Secondary outcomes are preparedness for caregiving, caregiving reactions and acute (hospital) admissions of the patient. In addition, the feasibility of the intervention will be evaluated. The study was funded in October 2016 and was ethically approved in April 2019. IMPACT: Findings from this study will contribute to the scientific and practical knowledge of nursing interventions to support family caregivers in end-of-life care.

trial registrationThe Netherlands Trial Register (NL7702).

Indexed as

Adaptation, PsychologicalSocial SupportAdultAgedAged, 80 and overCaregiversFamilyFemaleHome Care ServicesHumansMaleMiddle AgedNetherlandsRandomized Controlled Trials as TopicTerminal Careburdenend-of-life carefamily caregiversneeds-assessmentnursingnursing interventionpreparedness caregivingsupporttrial

Identifiers

PMID32048316
PMCPMC7187191
OpenAlexW3005657001

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.