Evidence map›Paper›PMID 32046583›Full record

ArticleJournal of applied gerontology : the official journal of the Southern Gerontological Society2021

Alzheimer Disease and Related Dementia Resources: Perspectives of African American and Caucasian Family Caregivers in Northwest Louisiana.

Elizabeth A Disbrow, Connie L Arnold, Nathaniel Glassy, Collette M Tilly, Kate M Langdon, Deniz Gungor, Terry C Davis

Abstract read
In one paragraph

Article in Journal of applied gerontology : the official journal of the Southern Gerontological Society, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Agricultural Injuries With Dementia: Double Whammy?American journal of industrial medicine · 2026
    Article
  3. Article
  4. Unmet Needs and Factors Impacting Home- and Community-Based Service Use Among Rural Appalachian Caregivers of People With Alzheimer's and Dementia.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025
    Article
  5. Article
  6. Article
  7. Trend in Respite Use by Race Among Caregivers for People Living With Dementia.The journals of gerontology. Series A, Biological sciences and medical sciences · 2024
    Article
  8. Article
  9. Review
  10. Using a Warm Hand-Off Approach to Enroll African American Caregivers in a Multi-Site Clinical Trial: The Handshake Protocol.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2022
    Article
  11. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Elizabeth A DisbrowDepartment of Neurology and Center for Brain Health, Louisiana State University Health Sciences Center Shreveport, USA.
Connie L ArnoldDepartment of Medicine, and Fiest-Weiller Cancer Center at Louisiana State University Health Sciences Center, USA.
Nathaniel GlassyDepartment of Neurology and Center for Brain Health, Louisiana State University Health Sciences Center Shreveport, USA.ORCID 0000-0002-0105-5893
Collette M TillyDepartment of Neurology and Center for Brain Health, Louisiana State University Health Sciences Center Shreveport, USA.
Kate M LangdonDepartment of Medicine, and Fiest-Weiller Cancer Center at Louisiana State University Health Sciences Center, USA.
Deniz GungorDepartment of Medicine, and Fiest-Weiller Cancer Center at Louisiana State University Health Sciences Center, USA.
Terry C DavisDepartment of Medicine, and Fiest-Weiller Cancer Center at Louisiana State University Health Sciences Center, USA.

Funding

Tracking & Evaluation CoreU54GM104940 · NIGMS · LSU PENNINGTON BIOMEDICAL RESEARCH CTR · PI Peter Todd Katzmarzyk · 2012 to 2026
$69.1M
NIGMS NIH HHS U54 GM104940
6 · The paper itself

Abstract

We examined knowledge of Alzheimer's disease and related dementias (ADRD), resources, and research opportunities among older African American (AA) and Caucasian caregivers. A mixed methods design integrated qualitative (focus group) and quantitative (survey) data from Northwest Louisiana. Eight focus groups (59 adults, 92% female, 78% AA, 25% rural) revealed limited knowledge. Quantitative findings from 117 ADRD caregivers (83% female, 72% AA, 30% limited heath literacy, 27% low income) indicated participants obtained information from providers (54%), friends and relatives (32%), and the internet (37%). Barriers to care were cost (24%) and lack of family agreement (17%). Few families used adult daycare (8%) or support groups (28%). Concerns about research participation were violation of privacy (30%) and fear of patient distress (27%). Distrust of doctors was minimal (3%). Findings did not vary by race. There is a need for clear, literacy-appropriate information about ADRD, caregiver resources, and clinical trials.

Indexed as

Alzheimer DiseaseCaregiversAdultBlack or African AmericanFemaleFocus GroupsHumansMaleRural PopulationAlzheimer’s diseasecaregiverlow incomeminorityresearch participationrural

Identifiers

PMID32046583
PMCPMC8637937

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.