Trial reportHealth expectations : an international journal of public participation in health care and health policy2020
Experience-based co-design-Adapting the method for a researcher-initiated study in a multi-site setting.
Trial report in Health expectations : an international journal of public participation in health care and health policy, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
40 citing papers in PubMed.
- Experiences of patients with heart failure with medicines at transition intervention: Findings from the process evaluation of the Improving the Safety and Continuity of Medicines management at Transitions of care (ISCOMAT) programme.Health expectations : an international journal of public participation in health care and health policy · 2022Trial
- Experience-based co-design-Adapting the method for a researcher-initiated study in a multi-site setting.Health expectations : an international journal of public participation in health care and health policy · 2020Trial
- "What Patients Want": a qualitative study of expectations and ideal clinical encounters in obesity consultations.International journal of obesity (2005) · 2026Article
- Co-Designing a Care Pathway for Healthcare Professionals to Recognise and Respond to Human Trafficking Victims in Emergency Departments.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Communicating the risk of psychiatric in-patient or enhanced community care in dementia.BJPsych open · 2026Article
- From Co-Design to Quality Improvement: Using the Double Diamond Framework to Develop Primary Care Redesign Priorities for Hypertension Care.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Co-designed point-of-care ultrasound program development and implementation at a Veterans Affairs emergency department.Internal and emergency medicine · 2026Article
- The feasibility of the enhancing medicines self-management for community dwelling people living with dementia and family carers (MAGNET) psychosocial intervention: protocol for a non-randomised feasibility study.Pilot and feasibility studies · 2025Article
- Experiences of weight management during rehabilitation in breast cancer survivors: A qualitative study.Asia-Pacific journal of oncology nursing · 2025Article
- Supporting Older People Living With Frailty to Self-Manage Multiple Medicines: An Experience-Based Co-Design of a Complex Intervention Developed in UK Primary Care.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- [Participatory approaches in the development of AI applications in medicine: opportunities and challenges].Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2025Review
- Co-Designing Aphasia Services: Evaluation of Involvement and Processes to Support Inclusion of People With Post Stroke Aphasia.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- The implementation and evaluation of a family-led novel intervention for delirium prevention and management in adult critically ill patients: A mixed-methods pilot study.Nursing in critical care · 2025Article
- Experience-based co-design of an active case finding service for colorectal cancer in community pharmacies: findings from a focused ethnography.Research involvement and engagement · 2025Article
- Adapting Experience-Based Co-Design to Disability Research: Co-Producing the CycLink Co-Design Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Developing an Inclusive Dance Guide for Children With Cerebral Palsy: A Co-Design Process and Initial Feasibility Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Socioculturally Appropriate Internet-Based Geriatric Care Model for Older Adults Living With HIV: Experience-Based Co-Design Approach.JMIR aging · 2025Article
- Enablers and Barriers to an Experience-Based Co-Design Process to Develop Service Improvements in Enhanced Community Care in Ireland: A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Improving healthcare services for living kidney donors: an experience-based approach in the Netherlands.Frontiers in public health · 2025Article
- General practice management after transition events: protocol for an experience-based co-design study.BJGP open · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
backgroundExperience-based co-design (EBCD) brings patients and staff together to co-design services. It is normally conducted in one organization which initiates and implements the process. We used the traditional EBCD method with a number of adaptations as part of a larger research study in the British National Health Service.
methodsThe primary aim was to assess the feasibility and acceptability of conducting research-initiated EBCD, to enhance intervention development prior to testing. As well as embedding the method in a research study, there were 3 further key adaptations: (a) working across primary and secondary care sectors, (b) working on multiple sites and (c) incorporating theory-informed analysis.
resultsWe recruited four sites (covering both primary and secondary care) and, on each site, conducted the initial traditional EBCD meetings, with separate staff and patient groups-followed by a single joint patient-staff event, where four priority areas for co-design were agreed. This event was driven by theory-informed analysis, as well as the traditional trigger film of patient experiences. Each site worked on one priority area, and the four co-design groups met over 2-3 months to design prototype tools. A second joint event was held (not usually undertaken in single-site EBCD) where they shared and compared outputs. The research team combined elements of these outputs to create an intervention, now being tested in a cluster randomized controlled trial.
conclusionsEBCD can be successfully adapted for use across an entire patient pathway with multiple organizations and as part of a research process to identify an intervention for subsequent testing in a randomized trial. Our pragmatic approach used the patient experience to identify areas for improvement and co-designed an intervention which directly reflected patient priorities.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.