Observational studyJournal of medical Internet research2020
Real-Time Access to Electronic Health Record via a Patient Portal: Is it Harmful? A Retrospective Observational Study.
Observational study in Journal of medical Internet research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 38 citations in OpenAlex.
- Exploring Patient Empowerment and Health System Outcomes Associated With MyHealthNB, a Provincial Personal Health Record System: Exploratory Mixed Methods Study.Journal of medical Internet research · 2026Article
- Developing a tool to facilitate person-centered care in a university hospital in collaboration with patients and healthcare professionals.BMC health services research · 2026Article
- Adoption of Personal Health Records in Dutch Hospitals and Private Medical Clinics: Longitudinal Study.Journal of medical Internet research · 2025Article
- Examining Health Care Provider Experiences With Patient Portal Implementation: Mixed Methods Study.Journal of medical Internet research · 2025Article
- Patient Experiences and Perspectives When MyChart is Introduced in a Large Community Hospital: Mixed Methods Study.Journal of medical Internet research · 2025Article
- Designing an interoperable patient portal to augment an Advanced Nurse Practitioner service for Children with hydrocephalus.International journal of nursing studies advances · 2024Article
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- Patients' Experiences of a National Patient Portal and Its Usability: Cross-Sectional Survey Study.Journal of medical Internet research · 2023Article
- Patients' choices regarding online access to laboratory, radiology and pathology test results on a hospital patient portal.PloS one · 2023Article
- Patients' Experiences of Web-Based Access to Electronic Health Records in Finland: Cross-sectional Survey.Journal of medical Internet research · 2022Article
- Prevalence and Factors Associated with Patient-Requested Corrections to the Medical Record through Use of a Patient Portal: Findings from a National Survey.Applied clinical informatics · 2022Article
- Implementation Strategies to Improve Engagement With a Multi-Institutional Patient Portal: Multimethod Study.Journal of medical Internet research · 2021Article
- Mental Health Care Professionals' Appraisal of Patients' Use of Web-Based Access to Their Electronic Health Record: Qualitative Study.Journal of medical Internet research · 2021Article
- Development and Validation of a Useful Taxonomy of Patient Portals Based on Characteristics of Patient Engagement.Methods of information in medicine · 2021Article
- Participants' views and experiences from setting up a shared patient portal for primary and specialist health services- a qualitative study.BMC health services research · 2021Article
- EVALUATION OF A TELEHEALTH APPLICATION (SEHHA) USED DURING THE COVID-19 PANDEMIC IN SAUDI ARABIA: PROVIDER EXPERIENCE AND SATISFACTION.Perspectives in health information managemen · 2021Article
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Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe rapid implementation of patient portals, through which patients can view their electronic health record, creates possibilities for information exchange and communication between patients and health care professionals. However, real-time disclosure of test results and clinical reports poses a source of concern.
objectiveThis study aimed to examine negative experiences resulting from real-time disclosure of medical information through a patient portal.
methodsData were collected over a 2-year period in 4 datasets consisting of incidents reported by health care professionals, complaints of patients, patient issues at a portal helpdesk, and a survey among health care professionals. Incidents, complaints, issues, and answers on the survey were counted and analyzed through an iterative process of coding.
resultsWithin the chosen time frame of 2 years, on average, 7978 patients per month logged into the portal at least once. The amount of negative incidents and complaints was limited. A total of 6 incidents, 4 complaints, and 2506 issues at the helpdesk concerning the patient portal were reported, of which only 2, 1, and 3 cases of these respective databases concerned real-time disclosure of medical information through the patient portal. Moreover, 32 out of 216 health care professionals reported patients that had negative experiences with real-time disclosure. Most negative consequences concerned confused and anxious patients when confronted with unexpected or incomprehensible results.
conclusionsReal-time access through a patient portal did not substantially result in negative consequences. The negative consequences that did occur can be mitigated by adequate preparation and instruction of patients concerning the various functionalities of the patient portal, real-time disclosure of test results in particular, and can also be managed through educating health care professionals about the patient portal and making adjustments in the daily practice of health care professionals.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.