ArticlePsycho-oncology2020
Unmet information needs of men with breast cancer and health professionals.
Article in Psycho-oncology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 3 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
14 citing papers in PubMed, 3 syntheses or guidelines pooled it, 31 citations in OpenAlex.
- Online education for rare genetic diseases: a systematic review.Orphanet journal of rare diseases · 2025Pooled it
- Experiences and perceptions of men following breast cancer diagnosis: a mixed method systematic review.BMC cancer · 2024Pooled it
- Unmet supportive care needs of breast cancer survivors: a systematic scoping review.BMC cancer · 2023Pooled it
- Beyond demographics: physical activity as a key behavioral marker for identifying the guidance-seeking profile to guide precision survivorship care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Information Needs and Preferences of Men With Breast Cancer: A Qualitative Analysis of Internet Forum Posts.The breast journal · 2026Article
- Accurate Evaluation and Forecasting in Chemotherapy-Related Information Needs of People With Breast Cancer: Insights From an Online Medical Consultation Platform.Journal of nursing management · 2025Article
- Gene expression profiling for the diagnosis of male breast cancer.BMC cancer · 2024Article
- Male Breast Cancer Biology, Screening, Treatment, and Follow-Up: A Narrative Review.Iranian journal of public health · 2024Review
- Asking those who know their needs best: A framework for active engagement and involvement of childhood cancer survivors and parents in the process of psychosocial research-A workshop report.Cancer reports (Hoboken, N.J.) · 2024Article
- Quality of Life in Male Breast Cancer: Prospective Study of the International Male Breast Cancer Program (EORTC10085/TBCRC029/BIG2-07/NABCG).The oncologist · 2023Article
- Men's Lived Experiences of Breast Cancer and Changes in Occupation.Occupational therapy international · 2023Article
- Exploring the experiences and psychosocial support needs of informal carers of men with breast cancer: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Male Breast Cancer: Treatment Trends, Reported Outcomes, and Suggested Recommendations.Cureus · 2021Review
- Unmet information needs of men with breast cancer and health professionals.Psycho-oncology · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveMale breast cancer (MBC) is rare. Information about breast cancer is usually designed for female patients. However, in males this disease and some side effects differ from its female counterpart. Therefore, there is a need for male-specific information. The aim was to assess unmet information needs of (a) MBC patients and (b) health professionals.
methodsDutch MBC patients (diagnosed between 2011 and 2016 in 21 hospitals), patient advocates and partners were invited to participate in focus groups and/or complete a paper-based questionnaire on information needs. In addition, an online questionnaire on information needs was sent to health professionals involved in MBC patient care.
resultsIn three focus groups with MBC patients (N = 12) and partners (N = 2) the following unmet information themes were identified: patients' experiences/photographs, symptoms, (delay of) diagnosis, treatments, side effects, follow-up, psychological impact/coping, genetics and family, research and raising awareness. 77 of 107 MBC patients (72%) completed the questionnaire: most patients lacked information about acute (65%) or late (56%) side effects, particularly sexual side effects. Among health professionals, 110 of 139 (79%) had searched for MBC-related information, specifically: patient information, anti-hormonal therapy, genetic testing, research, and psychosocial issues.
conclusionsUnmet information needs in MBC patients and health professionals were identified. Specific information on MBC should be developed to improve timely diagnosis, quality of life, treatment, and survival. A targeted website is an ideal tool to meet these needs. Therefore, we integrated these results into a user-centered design to develop an informative website, www.mannenmetborstkanker.nl.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.