Evidence map›Paper›PMID 32034018›Full record

ArticleBMJ open2020

Patients, clinicians and researchers working together to improve cardiovascular health: a qualitative study of barriers and priorities for patient-oriented research.

Maria-Jose Santana, Sandra Zelinsky, Sadia Ahmed, Chelsea Doktorchik, Matthew James, Stephen Wilton, Hude Quan, Nicolas Fernandez, Todd Anderson, Sonia Butalia

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed, 1 pooled it
3.2field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 1 synthesis or guideline pooled it, 16 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Review
  5. Article
  6. Article
  7. Codesigning person-centred quality indicators with diverse communities: A qualitative patient engagement study.Health expectations : an international journal of public participation in health care and health policy · 2022
    Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 2 institutions in 1 country.

Maria-Jose SantanaCommunity Health Sciences, University of Calgary, Calgary, Alberta, Canada mjsantan@ucalgary.ca.ORCID 0000-0002-0202-5952
Sandra ZelinskyCommunity Health Sciences, University of Calgary, Calgary, Alberta, Canada.
Sadia AhmedCommunity Health Sciences, University of Calgary, Calgary, Alberta, Canada.ORCID 0000-0002-8040-7198
Chelsea DoktorchikCommunity Health Sciences, University of Calgary, Calgary, Alberta, Canada.
Matthew JamesCommunity Health Sciences, University of Calgary, Calgary, Alberta, Canada.
Stephen WiltonCommunity Health Sciences, University of Calgary, Calgary, Alberta, Canada.
Hude QuanCommunity Health Sciences, University of Calgary, Calgary, Alberta, Canada.
Nicolas FernandezFamily and Emergency Medicine, Université de Montréal, Montreal, Quebec, Canada.
Todd AndersonMedicine, University of Calgary, Calgary, AB, Canada.
Sonia ButaliaCommunity Health Sciences, University of Calgary, Calgary, Alberta, Canada.
University of Calgary · CAUniversité de Montréal · CA

Funding

CIHR 319191
6 · The paper itself

Abstract

objectivesThe overall goal of this study is to identify priorities for cardiovascular (CV) health research that are important to patients and clinician-researchers. We brought together a group of CV patients and clinician-researchers new to patient-oriented research (POR), to build a multidisciplinary POR team and form an advisory committee for the Libin Cardiovascular Institute of Alberta.

designThis qualitative POR used a participatory health research paradigm to work with participants in eliciting their priorities. Therefore, participants were involved in priority setting, and analysis of findings. Participants also developed a plan for continued engagement to support POR in CV health research.

settingLibin Cardiovascular Institute of Alberta, Cumming School of Medicine, University of Calgary, Canada.

participantsA total of 23 participants, including patients and family caregivers (n=12) and clinician-researchers (n=11).

resultsParticipants identified barriers and facilitators to POR in CV health (lack of awareness of POR and poor understanding on the role of patients) and 10 research priorities for improving CV health. The CV health research priorities include: (1) CV disease prediction and prevention, (2) access to CV care, (3) communication with providers, (4) use of eHealth technology, (5) patient experiences in healthcare, (6) patient engagement, (7) transitions and continuity of CV care, (8) integrated CV care, (9) development of structures for patient-to-patient support and (10) research on rare heart diseases.

conclusionsIn this study, research priorities were identified by patients and clinician-researchers working together to improve CV health. Future research programme and projects will be developed to address these priorities. A key output of this study is the creation of the patient advisory council that will provide support and will work with clinician-researchers to improve CV health.

Indexed as

Professional-Patient RelationsAdultAlbertaCardiovascular DiseasesCommunicationFemaleHealth PersonnelHealth PromotionHumansMaleMiddle AgedPatient ParticipationQualitative ResearchQuality of Lifecardiovascular healthpatient engagementpatient oriented researchpriority settingqualitative researchresearch priorities

Identifiers

PMID32034018
PMCPMC7044837
OpenAlexW3005328006

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.