Evidence map›Paper›PMID 32031623›Full record

ArticleGigaScience2020

The Data Tags Suite (DATS) model for discovering data access and use requirements.

George Alter, Alejandra Gonzalez-Beltran, Lucila Ohno-Machado, Philippe Rocca-Serra

Abstract read
In one paragraph

Article in GigaScience, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
  4. Article
  5. Review
  6. Review
  7. Up-to-the-Minute Privacy PoliciesFrontiers in big data · 2021
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

George AlterUniversity of Michigan, ICPSR 330 Packard Street, Ann Arbor MI 48104, USA.
Alejandra Gonzalez-BeltranScience and Technology Facilities Council, Scientific Computing Department, Rutherford Appleton Laboratory, Harwell Campus, Didcot, 0X11 0QX, United Kingdom.
Lucila Ohno-MachadoUniversity of California, San Diego, Division of Biomedical Informatics, 9500 Gilman Dr. MC 0728, La Jolla CA 92093-0728, USA.
Philippe Rocca-SerraOxford e-Research Centre University of Oxford 7 Keble Road, Oxford, OX1 3QG United Kingdom.

Funding

BioCADDIE: Biomedical and healthCAre Data Discovery and Indexing Engine centerU24AI117966 · NIAID · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI OHNO-MACHADO, LUCILA · 2014 to 2016
$10.9M
Scientific/Technical CoreP2CHD041028 · NICHD · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI Sarah A. Burgard · 2017 to 2026
$6.5M
Decentralized differentially-private methods for dynamic data release and analysisR01GM118609 · NIGMS · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI JIANG, XIAOQIAN, OHNO-MACHADO, LUCILA · 2017 to 2020
$2.3M
Biotechnology and Biological Sciences Research Council BB/E025080/1Biotechnology and Biological Sciences Research Council BB/I000771/1NIAID NIH HHS U24 AI117966NICHD NIH HHS P2C HD041028NIGMS NIH HHS R01 GM118609
6 · The paper itself

Abstract

backgroundData reuse is often controlled to protect the privacy of subjects and patients. Data discovery tools need ways to inform researchers about restrictions on data access and re-use.

resultsWe present elements in the Data Tags Suite (DATS) metadata schema describing data access, data use conditions, and consent information. DATS metadata are explained in terms of the administrative, legal, and technical systems used to protect confidential data.

conclusionsThe access and use metadata items in DATS are designed from the perspective of a researcher who wants to find and re-use existing data. We call for standard ways of describing informed consent and data use agreements that will enable automated systems for managing research data.

Indexed as

Computer SecurityData ManagementData MiningMetadataconfidential datadata accessdata discoverydata usemetadata

Identifiers

PMID32031623
PMCPMC7006671

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.