ArticleJCO global oncology2020
Understanding Aboriginal Peoples' Cultural and Family Connections Can Help Inform the Development of Culturally Appropriate Cancer Survivorship Models of Care.
Article in JCO global oncology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it, 50 citations in OpenAlex.
- Systematic review of Aboriginal and Torres Strait Islander peoples' experiences and supportive care needs associated with cancer.BMC public health · 2024Pooled it
- Indigenous Cancer Survivors in Peer Education and Community Knowledge Exchange: A Scoping Review.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026Review
- Evaluation of online cancer information for Aboriginal and Torres Strait Islander peoples: a systematic environmental scan.JNCI cancer spectrum · 2026Article
- Medical pluralism and kincentric care in Indigenous Australia: Yanyuwa experiences of illness and the importance of keeping company.Medical anthropology quarterly · 2026Article
- Head and Neck Cancer Care Experiences of First Nations Australians: Insights From Patients and Carers.The Australian journal of rural health · 2026Article
- Supportive care needs and assessment tools for family caregivers of Indigenous people with cancer: a narrative review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Review
- Aboriginal and Torres Strait Islander children and cancer: a narrative review of incidence, mortality, barriers to diagnosis and treatment, psychosocial needs and interventions.The Lancet regional health. Western Pacific · 2025Review
- Understanding experiences of optimal survivorship care: findings from a population-based study of cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- "We don't do any of these things because we are a death-denying culture": Sociocultural perspectives of Black and Latinx cancer caregivers.Palliative & supportive care · 2024Article
- 'How Your Spirit Is Travelling'-Understanding First Nations Peoples' Experiences of Living Well with and after Cancer.International journal of environmental research and public health · 2024Article
- Making Big Business Everybody's Business: Aboriginal leaders' perspectives on commercial activities influencing aboriginal health in Victoria, Australia.Globalization and health · 2024Article
- Identifying methods to best integrate indigenous knowledge and perspectives within the radiation therapy undergraduate curriculum.Journal of medical radiation sciences · 2023Review
- Perspectives of Aboriginal People Affected by Cancer on the Need for an Aboriginal Navigator in Cancer Treatment and Support: A Qualitative Study.Healthcare (Basel, Switzerland) · 2022Article
- Indigenous Australians' Experiences of Cancer Care: A Narrative Literature Review.International journal of environmental research and public health · 2022Review
- Communicating cancer and its treatment to Australian Aboriginal and Torres Strait Islander patients with cancer: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- From Sorcery to Laboratory: Pandemics and Yanyuwa Experiences of Viral Vulnerability.Oceania; a journal devoted to the study of the native peoples of Australia, New Guinea, and the Islands of the Pacific · 2021Article
- Accessibility of cancer treatment services for Indigenous Australians in the Northern Territory: perspectives of patients and care providers.BMC health services research · 2021Article
- Cancer and Indigenous Populations: Time to End the Disparity.JCO global oncology · 2020Article
- Health System Enablers and Barriers to Continuity of Care for First Nations Peoples Living with Chronic Disease.International journal of integrated careArticle
- Implementing Optimal Care Pathways for Aboriginal and Torres Strait Islander People With Cancer: A Survey of Rural Health Professionals' Self-Rated Learning Needs.International journal of integrated careArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo explore the cancer diagnosis, treatment, and survivorship experiences of Aboriginal people in the Gippsland region, Victoria, Australia, and identify factors critical to the development of a culturally appropriate cancer survivorship model of care. PATIENTS AND
methodsYarning circles were used to capture the stories of 15 people diagnosed with cancer and/or those of family members. Yarning circles were conducted in two locations in the Gippsland region. Sessions were facilitated by an Aboriginal Elder, audio recorded, and transcribed verbatim. Thematic analysis of the data were triangulated among three researchers and incorporated researcher reflexivity.
resultsCultural connections and family were critical supports on the cancer journey. Putting the needs of the family first and caring for sick family members were more important than an individual's own health. There was "no time to grieve" for one's own cancer diagnosis and look after oneself. Cancer was a private experience; however, the constancy of deaths highlighted the importance of raising family awareness. Health professionals did not always understand the importance of people's cultural and family supports in their treatment and recovery. There were negatives attitudes in hospitals when family come to visit, seeing family as too large and overstaying visiting times. Health professionals did not seek family assistance with communication of information to family members whose literacy level was low, nor did they include family in treatment decision-making. Access to services depended on family support with transport, finances, and family responsibilities, often resulting in lapses in treatment and follow-up services.
conclusionUnderstanding the importance of Aboriginal peoples' cultural and family connections can help to inform the development of culturally safe cancer survivorship models of care.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.