ArticleArchives of disease in childhood. Fetal and neonatal edition2020
Priorities for collaborative research using very preterm birth cohorts.
Article in Archives of disease in childhood. Fetal and neonatal edition, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.
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Who cites it
14 citing papers in PubMed, 2 syntheses or guidelines pooled it, 43 citations in OpenAlex.
- Quality of Life of Parents of Premature Infants: A Systematic Review and Meta-Analysis.JAMA network open · 2026Pooled it
- Socioeconomic disparities in the postnatal growth of preterm infants: a systematic review.Pediatric research · 2025Pooled it
- The early educational environment at five years of age in a European cohort of children born very preterm: challenges and opportunities for research.BMC pediatrics · 2024Article
- Parenting stress and health-related quality of life among parents of extremely preterm born early adolescents in England: a cross-sectional study.Archives of disease in childhood. Fetal and neonatal edition · 2024Article
- Parental Experiences of Neonatal Care: A Nationwide Study on Determinants of Excellence.Neonatology · 2024Article
- Risk factors for cerebral palsy and movement difficulties in 5-year-old children born extremely preterm.Pediatric research · 2023Article
- Using Digital Tools to Study the Health of Adults Born Preterm at a Large Scale: e-Cohort Pilot Study.Journal of medical Internet research · 2023Article
- Differences in the attitudes towards resuscitation of extremely premature infants between neonatologists and obstetricians: a survey study in China.Frontiers in pediatrics · 2023Article
- Record linkage as a vital key player for the COVID-19 syndemic - The call for legal harmonization to overcome research challenges.International journal of population data science · 2023Article
- Machine learning methods to predict attrition in a population-based cohort of very preterm infants.Scientific reports · 2022Article
- Birth outcomes between 22 and 26 weeks' gestation in national population-based cohorts from Sweden, England and France.Acta paediatrica (Oslo, Norway : 1992) · 2022Article
- Identifying research priorities in newborn medicine: a Delphi study of parents' views.BMJ open · 2021Article
- Neurodevelopmental outcomes at age 5 among children born preterm: EPIPAGE-2 cohort study.BMJ (Clinical research ed.) · 2021Article
- Parent priorities for research and communication concerning childhood outcomes following preterm birth.Wellcome open research · 2021Article
Corrections and comments
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Authors and funding
13 authors at 8 institutions in 8 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo develop research priorities on the consequences of very preterm (VPT) birth for the RECAP Preterm platform which brings together data from 23 European VPT birth cohorts. DESIGN AND
settingThis study used a two-round modified Delphi consensus process. Round 1 was based on 28 research themes related to childhood outcomes (<12 years) derived from consultations with cohort researchers. An external panel of multidisciplinary stakeholders then ranked their top 10 themes and provided comments. In round 2, panel members provided feedback on rankings and on new themes suggested in round 1.
resultsOf 71 individuals contacted, 64 (90%) participated as panel members comprising obstetricians, neonatologists, nurses, general and specialist paediatricians, psychologists, physiotherapists, parents, adults born preterm, policy makers and epidemiologists from 17 countries. All 28 initial themes were ranked in the top 10 by at least six panel members. Highest ranking themes were: education (73% of panel members' top 10 choices); care and outcomes of extremely preterm births, including ethical decisions (63%); growth and nutrition (60%); emotional well-being and social inclusion (55%); parental stress (55%) and impact of social circumstances on outcomes (52%). Highest ranking themes were robust across panel members classified by background. 15 new themes had at least 6 top 10 endorsements in round 2.
conclusionsThis study elicited a broad range of research priorities on the consequences of VPT birth, with good consensus on highest ranks between stakeholder groups. Several highly ranked themes focused on the socioemotional needs of children and parents, which have been less studied.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.