Evidence map›Paper›PMID 32025635›Full record

ArticleJAMIA open2019

Opportunities and challenges to advance the use of electronic patient-reported outcomes in clinical care: a report from AMIA workshop proceedings.

Elizabeth Austin, Cynthia LeRouge, Andrea L Hartzler, Arlene E Chung, Courtney Segal, Danielle C Lavallee

Abstract read
In one paragraph

Article in JAMIA open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed.

  1. Systematic nurse-led consultations based on electronic patient-reported outcomes for women with endometrial or ovarian cancer during chemotherapy-a feasibility study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  2. Article
  3. Article
  4. Moving beyond barriers: a mixed-method study to develop evidence-based strategies to improve implementation of PROMs in clinical oncology care.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  5. Observational
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. The technical landscape for patient-centered CDS: progress, gaps, and challenges.Journal of the American Medical Informatics Association : JAMIA · 2022
    Article
  12. Article
  13. Review
  14. Lessons learned about virtual cancer care and distress screening in the time of COVID-19.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021
    Article
  15. Article
  16. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Elizabeth AustinDepartment of Surgery, Surgical Outcomes Research Center, University of Washington, Seattle, Washington, USA.
Cynthia LeRougeDepartment of Information Systems & Business Analytics, College of Business, Florida International University, Miami, Florida, USA.
Andrea L HartzlerDepartment of Biomedical Informatics and Medical Education, University of Washington, Seattle, Washington, USA.
Arlene E ChungDepartment of Health Services, University of Washington, Seattle, Washington, USA.
Courtney SegalDepartment of Surgery, Surgical Outcomes Research Center, University of Washington, Seattle, Washington, USA.
Danielle C LavalleeDepartment of Surgery, Surgical Outcomes Research Center, University of Washington, Seattle, Washington, USA.

Funding

QuBBD: Statistical & Visualization Methods for PGHD to Enable Precision Medicine R01EB025024 · NIBIB · UNIV OF NORTH CAROLINA CHAPEL HILL · PI CHUNG, ARLENE E. · 2017 to 2019
$918k
AHRQ HHS R01 HS023785AHRQ HHS T32 HS013853NIBIB NIH HHS R01 EB025024
6 · The paper itself

Abstract

Despite the demonstrated value of patient-centered care, health systems have been slow to integrate the patient's voice into care delivery through patient-reported outcomes (PROs) with electronic tools. This is due in part to the complex interplay of technology, workflow, and human factors that shape the success of electronic PROs (ePROs) use. The 2018 American Medical Informatics Association Annual Symposium served as the setting for a half-day interactive workshop with diverse stakeholders to discuss proposed best practices for the planning, design, deployment, and evaluation of ePROs. We provide this collective commentary that synthesizes participant feedback regarding critical challenges that prohibit the scale and spread of ePROs across healthcare delivery systems, including governance and leadership, workflow and human factors, informatics, and data science. In order to realize the promise of ePROs at scale, adaptable approaches are critical to balance the needs of individual users with health systems at large.

Indexed as

data visualizationhealth information technologyimplementationpatient engagementpatient-reported outcomes

Identifiers

PMID32025635
PMCPMC6994002

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.