Evidence map›Paper›PMID 32022350›Full record

SynthesisHealth expectations : an international journal of public participation in health care and health policy2020

Measuring shared decision making in oncology: Development and first testing of the iSHAREpatient and iSHAREphysician questionnaires.

Hanna Bomhof-Roordink, Fania R Gärtner, Nanny van Duijn-Bakker, Trudy van der Weijden, Anne M Stiggelbout, Arwen H Pieterse

Abstract readSystematic Review
In one paragraph

Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Measuring shared decision making in oncology: Development and first testing of the iSHAREpatient and iSHAREphysician questionnaires.Health expectations : an international journal of public participation in health care and health policy · 2020
    Pooled it
  3. Article
  4. Article
  5. Article
  6. Article
  7. Patient Participation and the Environment: A Scoping Review of Instruments.International journal of environmental research and public health · 2022
    Article
  8. Observational
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Hanna Bomhof-RoordinkMedical Decision Making, Department of Biomedical Data Sciences, Leiden University Medical Center, Leiden, The Netherlands.ORCID 0000-0003-4339-1737
Fania R GärtnerMedical Decision Making, Department of Biomedical Data Sciences, Leiden University Medical Center, Leiden, The Netherlands.ORCID 0000-0002-0351-0204
Nanny van Duijn-BakkerMedical Decision Making, Department of Biomedical Data Sciences, Leiden University Medical Center, Leiden, The Netherlands.
Trudy van der WeijdenDepartment of Family Medicine, CAPHRI School for Care and Public Health Research Institute, Maastricht University, Maastricht, The Netherlands.ORCID 0000-0002-7469-3781
Anne M StiggelboutMedical Decision Making, Department of Biomedical Data Sciences, Leiden University Medical Center, Leiden, The Netherlands.ORCID 0000-0002-6293-4509
Arwen H PieterseMedical Decision Making, Department of Biomedical Data Sciences, Leiden University Medical Center, Leiden, The Netherlands.ORCID 0000-0001-6395-0052

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundExisting measures to assess shared decision making (SDM) have often been developed based on an ill-defined underlying construct, and many assess physician behaviours only or focus on a single patient-physician encounter.

objectiveTo (a) develop a patient and a physician questionnaire to measure SDM in oncology and (b) determine their content validity and comprehensibility.

methodsA systematic review of SDM models and an oncology-specific SDM model informed the domains of the SDM construct. We formulated items for each SDM domain. Cancer patients and physicians rated content validity in an online questionnaire. We assumed a formative measurement model and performed online field-testing in cancer patients to inform further item reduction. We tested item comprehension in cognitive interviews with cancer patients and physicians.

resultsWe identified 17 domains and formulated 132 items. Twelve cancer patients rated content validity at item level, and 11 physicians rated content validity at domain level. We field-tested the items among 131 cancer patients and conducted cognitive interviews with eight patients and five physicians. These phases resulted in the 15-item iSHAREpatient and 15-item iSHAREphysician questionnaires, covering 13 domains.

conclusionsWe thoroughly developed the iSHARE questionnaires. They both assess patient and physician behaviours and cover the entire SDM process rather than a single consultation.

Indexed as

Decision Making, SharedPatient ParticipationDecision MakingHumansPhysician-Patient RelationsPsychometricsReproducibility of ResultsSurveys and Questionnairescontent validityfield-testingformativeoncologyquestionnaireshared decision making

Identifiers

PMID32022350
PMCPMC7104639

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.