Evidence map›Paper›PMID 32020887›Full record

ArticleBMC complementary medicine and therapies2020

Parents' experiences of information-seeking and decision-making regarding complementary medicine for children with autism spectrum disorder: a qualitative study.

Caroline A Smith, Chloe Parton, Marlee King, Gisselle Gallego

Open access · goldAbstract read
In one paragraph

Article in BMC complementary medicine and therapies, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 1 pooled it
1.2field-weighted citation impact, top 23% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 1 synthesis or guideline pooled it, 29 citations in OpenAlex.

  1. Pooled it
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  5. Characterizing Project ECHO Autism Case Recommendations and Implementation.Journal of autism and developmental disorders · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 3 institutions in 1 country.

Caroline A SmithNICM Health Research Institute, Western Sydney University, Campbelltown Campus, Locked Bag 1797, Penrith, Sydney, NSW, 2571, Australia. caroline.smith@westernsydney.edu.au.ORCID http://orcid.org/0000-0002-7828-0597
Chloe PartonTranslational Health Research Institute, Western Sydney University, Sydney, NSW, Australia.
Marlee KingSchool of Medicine, Western Sydney University, Sydney, NSW, Australia.
Gisselle GallegoSchool of Medicine, University of Notre Dame, Sydney, NSW, Australia.
Western Sydney University · AUThe University of Notre Dame Australia · AUTranslational Research Institute · AU

Funding

School of Science and Health, Western Sydney University NA
6 · The paper itself

Abstract

backgroundComplementary and alternative medicine and therapies (CAM) are widely used by parents of children with autism spectrum disorder (ASD). However, there is a gap in our understanding of how and why parents of children with ASD make decisions about CAM treatment, and how "evidence" influences their decision-making. The aim of this study was to explore views and perspectives on CAM decision-making among parents of children with ASD in Australia.

methodsSemi-structured interviews were conducted with parents of children with ASD (18 years and under) who were living in Australia. The interviews were digitally recorded, transcribed and then analysed using thematic analysis.

resultsTwenty-one parents were interviewed (20 women and one man). The mean age of participants was 43 years, (SD = 5.12 years), the majority of whom were born in Australia (71%), and almost half (43%) had a bachelor degree or higher. Three main themes were identifiedin the thematic analysis. First theme was 'Parents' experiences of researching CAM treatments, the second theme was, "Navigating CAM information and practices", which comprises of the subthemes: Assessing information on CAM treatments' What counts as 'evidence'? and Assessing the impact of CAM treatments on the child - What counts as effective?, and the final theme was, "Creating a central and trustworthy source about CAM". Across themes parents' CAM decision-making was described as pragmatic, influenced by time, cost, and feasibility. Parents also reported that information on CAM was complex and often conflicting, and the creation of a centralised and reliable source of information on CAM was identified as a potential solution to these challenges.

conclusionThe development of evidence-based information resources for parents and supporting CAM health literacy may assist with navigating CAM decision-making for children's with ASD.

Indexed as

Clinical Decision-MakingComplementary TherapiesInformation Seeking BehaviorAdolescentAdultAustraliaAutism Spectrum DisorderChildChild, PreschoolEvidence-Based MedicineFemaleHumansMaleMiddle AgedParentsQualitative ResearchAutism spectrum disorderComplementary medicineParental decision-making

Identifiers

PMID32020887
PMCPMC7076878
OpenAlexW3001306045

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.