Evidence map›Paper›PMID 32016683›Full record

SynthesisQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2020

Whom should we ask? A systematic literature review of the arguments regarding the most accurate source of information for valuation of health states.

Gert Helgesson, Olivia Ernstsson, Mimmi Åström, Kristina Burström

Abstract readSystematic Review
In one paragraph

Synthesis in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
30citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

30 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Time trade-off health state utility values for depression: a systematic review and meta-analysis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023
    Pooled it
  2. Trial
  3. Review
  4. Global Burden of Disease disability weights for the US National Electronic Injury Surveillance System - All Injury Program.Injury prevention : journal of the International Society for Child and Adolescent Injury Prevention · 2026
    Article
  5. Article
  6. Nothing about us, without us? A reflection on and call for involving children in the process of valuing child health.The European journal of health economics : HEPAC : health economics in prevention and care · 2026
    Article
  7. Do generic population utility scores accurately represent real-world experienced health?Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  8. Article
  9. Health State Utility Values: The Implications of Patient versus Community Ratings in Assessing the Value of Care.Medical decision making : an international journal of the Society for Medical Decision Making · 2025
    Article
  10. Article
  11. Using QALYs as an Outcome for Assessing Global Prediction Accuracy in Diabetes Simulation Models.Medical decision making : an international journal of the Society for Medical Decision Making · 2025
    Article
  12. Article
  13. Surgical prioritization based on decision model outcomes is not sensitive to differences between the health-related quality of life values estimates of physicians and citizens.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024
    Article
  14. Hypothetical versus experienced health state valuation: a qualitative study of adult general public views and preferences.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023
    Article
  15. Article
  16. Well-Being Adjusted Health Expectancy: A New Summary Measure of Population Health.European journal of population = Revue europeenne de demographie · 2022
    Article
  17. 'Like holding the axe on who should live or not': adolescents' and adults' perceptions of valuing children's health states using a standardised valuation protocol for the EQ-5D-Y-3L.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022
    Article
  18. Exploring EQ-5D-Y-3L Experience-Based VAS Values Derived Among Adolescents.Applied health economics and health policy · 2022
    Article
  19. The QALY is ableist: on the unethical implications of health states worse than dead.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022
    Article
  20. Inequality and heterogeneity in health-related quality of life: findings based on a large sample of cross-sectional EQ-5D-5L data from the Swedish general population.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Gert HelgessonStockholm Centre for Healthcare Ethics, Department of Learning, Informatics, Management and Ethics (LIME), Karolinska Institutet, 171 77, Stockholm, Sweden. gert.helgesson@ki.se.ORCID http://orcid.org/0000-0002-0075-0165
Olivia Ernstsson *QRC KI, Department of Learning, Informatics, Management and Ethics (LIME), Karolinska Institutet, 171 77, Stockholm, Sweden.
Mimmi Åström *Health Outcomes and Economic Evaluation Research Group, Stockholm Centre for Healthcare Ethics, Department of Learning, Informatics, Management and Ethics (LIME), Karolinska Institutet, 171 77, Stockholm, Sweden.
Kristina BurströmHealth Outcomes and Economic Evaluation Research Group, Stockholm Centre for Healthcare Ethics, Department of Learning, Informatics, Management and Ethics (LIME), Karolinska Institutet, 171 77, Stockholm, Sweden.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeTo determine and critically evaluate the arguments in the published literature regarding the most accurate source of information for valuation of health states: values based on experienced health states (patient values) or values based on described health states (general public values).

Indexed as

Health StatusHumansQuality of LifeDescribed health stateExperienced health stateGeneral public valuesHealth state valuationHypothetical health statePatient values

Identifiers

PMID32016683
PMCPMC7253527

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.