Evidence map›Paper›PMID 32014800›Full record

ArticleResearch in developmental disabilities2020

Self-care in caregivers of children with FASD: How do caregivers care for themselves, and what are the benefits and obstacles for doing so?

Carson Kautz, Jennifer Parr, Christie L M Petrenko

Open access · greenAbstract read
In one paragraph

Article in Research in developmental disabilities, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
0.8field-weighted citation impact, top 18% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 27 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 2 institutions in 1 country.

Carson KautzMt. Hope Family Center, University of Rochester, Rochester, NY 14608, USA. Electronic address: ckautz@ur.rochester.edu.
Jennifer ParrMt. Hope Family Center, University of Rochester, Rochester, NY 14608, USA. Electronic address: Jennifer_parr@urmc.rochester.edu.
Christie L M PetrenkoMt. Hope Family Center, University of Rochester, Rochester, NY 14608, USA. Electronic address: Christie.petrenko@rochester.edu.
University of Rochester · USUniversity of Rochester Medical Center · US

Funding

Development and Evaluation of a Preventive Intervention for Children with FASDK01AA020486 · NIAAA · UNIVERSITY OF ROCHESTER · PI PETRENKO, CHRISTIE LYNN MCGEE · 2011 to 2015
$598k
NIAAA NIH HHS K01 AA020486
6 · The paper itself

Abstract

backgroundCaregivers of children with fetal alcohol spectrum disorders (FASD) have elevated levels of stress, which can negatively impact family functioning and caregivers' mental and physical health. Self-care is a critical resource to address caregivers' stress.

aimsThis study describes strategies and obstacles related to self-care reported by caregivers of children with FASD. It also examines how caregivers' perceived confidence in and frequency of self-care is related to stress, parenting attitudes, and family needs. METHODS & PROCEDURES: Forty-six caregivers of children with FASD identified self-care strategies and obstacles and rated their confidence and frequency of self-care. Additional measures of perceived parenting efficacy, stress, family needs, child behavior, and family demographics were administered. Correlation analyses examined associations between self-care and measures of child and family functioning.

resultsSelf-care strategies and obstacles were varied. Greater reported confidence in self-care was associated with less parental distress and more satisfaction in the parenting role. Frequency of self-care was positively associated with confidence in self-care but not with any other measure of family functioning.

conclusionsCaregivers use a variety of strategies and face significant obstacles in self-care. Confidence in self-care may be associated with lower stress and greater satisfaction in the parenting role.

Indexed as

Fetal alcohol spectrum disordersFetal alcohol syndromeParentingPrenatal alcohol exposureSelf-careStress

Identifiers

PMID32014800
PMCPMC7392794
OpenAlexW3003924647

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.