Evidence map›Paper›PMID 32013949›Full record

SynthesisBMC palliative care2020

International palliative care research priorities: A systematic review.

Felicity Hasson, Emma Nicholson, Deborah Muldrew, Olufikayo Bamidele, Sheila Payne, Sonja McIlfatrick

Registry-linked trialOpen access · goldAbstract readSystematic Review
In one paragraph

Synthesis in BMC palliative care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07012265 (An Investigation of the Factors Related to Attitudes Towards Hospice and Palliative Care Among the Bunun Tribe in Taiwan), which is not on this map. Cited by 43 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
43citing papers in PubMed, 4 pooled it
14.6field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT07012265 completednot on this mapstarted 2024, after this paper: background citation

An Investigation of the Factors Related to Attitudes Towards Hospice and Palliative Care Among the Bunun Tribe in Taiwan: A Case Study of the Lona Village in Nantou

TypeobservationalSponsorChina Medical University HospitalRan2024 to 2025Enrolled82ConditionsResilience, Hospice Care
3 · Its place in the literature

Who cites it

43 citing papers in PubMed, 4 syntheses or guidelines pooled it, 128 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. A systematic review of qualitative research exploring patient and health professional perspectives of breakthrough cancer pain.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023
    Pooled it
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Review
  13. Article
  14. Article
  15. Engaging with Culturally and Linguistically Diverse Communities to Promote Palliative Care That Exceeds Expectation.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  16. Article
  17. Article
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 4 institutions in 2 countries.

Felicity HassonInstitute of Nursing and Health Research, School of Nursing, Ulster University, Shore Road, Newtownabbey, BT37 0QB, Northern Ireland. f.hasson@ulster.ac.uk.ORCID http://orcid.org/0000-0002-8200-9732
Emma NicholsonUCD School of Nursing, Midwifery and Health Systems, UCD College of Health and Agricultural Sciences, University College Dublin, Belfield, Dublin 4, Ireland.
Deborah MuldrewInstitute of Nursing and Health Research, School of Nursing, Ulster University, Shore Road, Newtownabbey, BT37 0QB, Northern Ireland.
Olufikayo BamideleAcademcy of Primary Care, Hull York Medical School, Allam Medical Building, University of Hull, Hull, HU6 7RZ, England.
Sheila PayneInternational Observatory on End of Life Care, Lancaster University, LA14YX, Lancaster, UK.
Sonja McIlfatrickInstitute of Nursing and Health Research, School of Nursing, Ulster University, Shore Road, Newtownabbey, BT37 0QB, Northern Ireland.
University of Ulster · GBLancaster University · GBUniversity College Dublin · IEUniversity of Hull · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThere has been increasing evidence and debate on palliative care research priorities and the international research agenda. To date, however, there is a lack of synthesis of this evidence, examining commonalities, differences, and gaps. To identify and synthesize literature on international palliative care research priorities originating from Western countries mapped to a quality assessment framework.

methodsA systematic review of several academic and grey databases were searched from January 2008-June 2019 for studies eliciting research priorities in palliative care in English. Two researchers independently reviewed, critically appraised, and conducted data extraction and synthesis.

resultsThe search yielded 10,235 articles (academic databases, n = 4108; grey literature, n = 6127), of which ten were included for appraisal and review. Priority areas were identified: service models; continuity of care; training and education; inequality; communication; living well and independently; and recognising family/carer needs and the importance of families. Methodological approaches and process of reporting varied. There was little representation of patient and caregiver driven agendas. The priorities were mapped to the Donabedian framework for assessing quality reflecting structure, process and outcomes and key priority areas.

conclusionsLimited evidence exists pertaining to research priorities across palliative care. Whilst a broad range of topics were elicited, approaches and samples varied questioning the credibility of findings. The voice of the care provider dominated, calling for more inclusive means to capture the patient and family voice. The findings of this study may serve as a template to understand the commonalities of research, identify gaps, and extend the palliative care research agenda.

Indexed as

InternationalityHumansPalliative CareResearchConsensusInternational. Systematic reviewPalliative careresearch priorities

Identifiers

PMID32013949
PMCPMC6998205
OpenAlexW3004641224

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.