ArticleJournal of applied gerontology : the official journal of the Southern Gerontological Society2021
Insights From African American Older Adults on Brain Health Research Engagement: "Need to See the Need".
Article in Journal of applied gerontology : the official journal of the Southern Gerontological Society, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it, 22 citations in OpenAlex.
- A systematic review and meta synthesis of barriers and facilitators to Black women's participation in healthcare research.BMC medical research methodology · 2026Pooled it
- Cognitive prescriptions for reducing dementia risk factors among Black/African Americans: feasibility, acceptability, and preliminary efficacy.Ethnicity & health · 2024Trial
- Trial
- Barriers and facilitators to recruitment, engagement, and retention of underrepresented populations in dementia prevention research: a scoping review.The journal of prevention of Alzheimer's disease · 2026Article
- Pathways to participation - a scoping review outlining barriers and enablers to participation in dementia research.The journal of prevention of Alzheimer's disease · 2026Article
- A direct comparison of laboratory and community EEG recordings for neurodevelopmental research.Scientific reports · 2025Article
- "I Have Come Because I See You Care About Me": Recruiting Older Black Americans for Genomic Research.Ethnicity & disease · 2024Article
- Mechanisms by Which Cultural-Centric Narrative Influences Interest in ADRD Research Among African American Adults.The Gerontologist · 2023Article
- Participatory Research Approaches in Alzheimer's Disease and Related Dementias Literature: A Scoping Review.Innovation in aging · 2023Article
- Enablers and barriers to engaging under-served groups in research: Survey of the United Kingdom research professional's views.NIHR open research · 2023Article
- Understanding Barriers and Facilitators to Signing Up for a Mobile-Responsive Registry to Recruit Healthy Volunteers and Members of Underrepresented Communities for Alzheimer's Disease Prevention Studies.The journal of prevention of Alzheimer's disease · 2023Article
- Article
- Improving community participation in clinical and translational research: CTSA Sentinel Network proof of concept study.Journal of clinical and translational science · 2020Article
- The Effectiveness of Community-based Outreach Events for the Promotion of African American Research Participation.Alzheimer disease and associated disordersArticle
- Enhancing inclusivity of older Black and African American adults in mental health research.Clinical gerontologistArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 4 institutions in 1 country.
Funding
Abstract
African Americans (AAs) have an elevated risk of developing dementia, yet are underrepresented in clinical research. This project uses a community-engaged photovoice approach to add to existing understanding of barriers and facilitators to AA participation in Alzheimer's disease research and identify strategies to enhance engagement. Three AA research advocates served as community facilitators to identify and guide groups of AA adults through an eight to nine session photovoice project. Group sessions involved discussions and sharing of images pertaining to various prompts in the area of brain health and research participation. Sessions were audiotaped and transcribed verbatim. Participants identified three categories of barriers to AA research participation: (a) Mistrust, (b) avoidance and fear of acknowledging problems, and (c) seeing the risks of research but not the need. Participants shared suggestions and approaches for ameliorating each of these barriers. This process revealed unique insights into barriers and opportunities for increasing AA engagement in aging and dementia research.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.