Evidence map›Paper›PMID 32005112›Full record

ArticleBMC pediatrics2020

Social inequalities in the participation and activity of children and adolescents with leukemia, brain tumors, and sarcomas (SUPATEEN): a protocol for a multicenter longitudinal prospective observational study.

Julia Roick, Reinhard Berner, Toralf Bernig, Bernhard Erdlenbruch, Gabriele Escherich, Jörg Faber, Christoph Klein, Konrad Bochennek, Christian Kratz, Joachim Kühr and 11 more

Registry-linked trialAbstract readClinical Trial Protocol
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC pediatrics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04101123 (Social Inequalities in the Participation and Activity in Children and Adolescents With Leukemia, Brain Tumors, and Sarcomas), which is not on this map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04101123 completednot on this map

Social Inequalities in the Participation and Activity in Children and Adolescents With Leukemia, Brain Tumors, and Sarcomas

TypeobservationalSponsorMartin-Luther-Universität Halle-WittenbergRan2020 to 2023Enrolled68ConditionsLeukemia, Brain Tumor, Sarcoma, Childhood CancerArmsNon-Interventional
3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Towards the assessment of financial distress among cancer patients: a conceptual model of the financial effects of a tumour disease.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Pooled it
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

21 authors.

Julia RoickInstitute of Medical Sociology (IMS), Martin Luther University Halle-Wittenberg, Magdeburger Str. 8, 06112, Halle (Saale), Germany. julia.roick@medizin.uni-halle.de.ORCID 0000-0003-2835-7792
Reinhard BernerDepartment of Pediatrics, University Hospital Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany.
Toralf BernigDepartment of Pediatrics, Martin Luther University Halle-Wittenberg, Halle, Germany.
Bernhard ErdlenbruchJohannes Wesling Klinikum Minden, University Hospital for Children and Adolescents, Ruhr University Hospital, Bochum, Germany.
Gabriele EscherichClinic of Pediatric Hematology and Oncology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Jörg FaberChildren's Hospital, Pediatric Hematology, Oncology and Hemostaseology, University Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany.
Christoph KleinDepartment of Pediatrics, Dr. von Hauner Children's Hospital, University Hospital, Ludwig-Maximilians-University Munich, Munich, Germany.
Konrad BochennekDepartment of Pediatric Hematology and Oncology, University Hospital, Frankfurt/Main, Frankfurt, Germany.
Christian KratzDepartment of Pediatric Hematology and Oncology, Hannover Medical School, Hannover, Germany.
Joachim KührClinic for Children and Adolescent Medicine, Klinikum Karlsruhe, Karlsruhe, Germany.
Alfred LänglerDepartment of Integrative Pediatric and Adolescent Medicine, Gemeinschaftskrankenhaus Herdecke, Herdecke, Professorship for Integrative Pediatrics, Center for integrative medicine, Faculty of Health, University of Witten/Herdecke, Witten, Germany.
Holger N LodeDepartment of Pediatrics, Children's University Hospital, University of Greifswald, Greifswald, Germany.
Markus MetzlerDepartment of Pediatrics and Adolescent Medicine, University Hospital Erlangen, Erlangen, Germany.
Hermann MüllerDepartment of Pediatrics and Pediatric Hematology/Oncology, University Children's Hospital, Klinikum Oldenburg AöR, Carl von Ossietzky University, Oldenburg, Germany.
Dirk ReinhardtPediatric Hematology and Oncology, University of Duisburg-Essen, Essen, Germany.
Axel SauerbreyClinic for Children and Adolescent Medicine, Helios Klinikum Erfurt, Erfurt, Germany.
Florian SchepperDepartment of Pediatric Oncology, Hematology and Hemostaseology, Leipzig University, Leipzig, Germany.
Wolfram ScheurlenCnopf'sche Children Clinic, Clinic Hallerwiese, Nürnberg, Germany.
Dominik SchneiderClinic for Children and Adolescent Medicine, Klinikum Dortmund, Dortmund, Germany.
Georg Christof SchwabeChildren's Hospital, Carl-Thiem-Klinikum, Cottbus, Germany.
Matthias RichterInstitute of Medical Sociology (IMS), Martin Luther University Halle-Wittenberg, Magdeburger Str. 8, 06112, Halle (Saale), Germany.

Funding

Deutsche Krebshilfe 70113424
6 · The paper itself

Abstract

backgroundAbout 2000 children and adolescents under the age of 18 are diagnosed with cancer each year in Germany. Because of current medical treatment methods, a high survival rate can be reached for many types of the disease. Nevertheless, patients face a number of long-term effects related to the treatment. As a result, physical and psychological consequences have increasingly become the focus of research in recent years. Social dimensions of health have received little attention in health services research in oncology so far. Yet, there are no robust results that allow an estimation of whether and to what extent the disease and treatment impair the participation of children and adolescents and which factors mediate this effect. Social participation is of great importance especially because interactions with peers and experiences in different areas of life are essential for the development of children and adolescents.

methodsData are collected in a longitudinal, prospective, observational multicenter study. For this purpose, all patients and their parents who are being treated for cancer in one of the participating clinics throughout Germany will be interviewed within the first month after diagnosis (t1), after completion of intensive treatment (t2) and half a year after the end of intensive treatment (t3) using standardized questionnaires. Analysis will be done by descriptive and multivariate methods. DISCUSSION: The results can be used to identify children and adolescents in high-risk situations at an early stage in order to be able to initiate interventions tailored to the needs. Such tailored interventions will finally reduce the risk of impairments in the participation of children and adolescents and increase quality of life.

trial registrationClinicalTrials.gov: NCT04101123.

Indexed as

Brain NeoplasmsLeukemiaSarcomaAdolescentChildGermanyHumansMulticenter Studies as TopicObservational Studies as TopicProspective StudiesQuality of LifeSocioeconomic FactorsBrain tumorsCancerChildren and adolescentsLeukemiaPatient reported outcomesSarcomasSocial participation

Identifiers

PMID32005112
PMCPMC6995139

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.