Trial reportPloS one2020
Measuring next of kin's experience of participation in the care of older people in nursing homes.
Trial report in PloS one, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02708498 (Implementation of Knowledge-Based Palliative Care for Frail Older Persons in Nursing Homes), which is not on this map. Cited by 6 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Implementation of Knowledge-Based Palliative Care for Frail Older Persons in Nursing Homes
Who cites it
6 citing papers in PubMed.
- Collaboration and Communication in Care at the Nursing Home: The Next of Kin's Experiences of Participation Following Educational Intervention for Staff.Nursing reports (Pavia, Italy) · 2025Article
- The Family Involvement in Care Questionnaire-An instrument measuring family involvement in inpatient care.PloS one · 2023Article
- Transformation of Rasch model logits for enhanced interpretability.BMC medical research methodology · 2022Article
- Article
- Reimagining Family Involvement in Residential Long-Term Care.Journal of the American Medical Directors Association · 2022Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundLack of conceptual clarity and measurement methods have led to underdeveloped efforts to measure experience of participation in care by next of kin to older people in nursing homes.
objectiveWe sought to assess the measurement properties of items aimed at operationalizing participation in care by next of kin, applied in nursing homes.
methodsA total of 37 items operationalizing participation were administered via a questionnaire to 364 next of kin of older people in nursing homes. Measurement properties were tested with factor analysis and Rasch model analysis.
resultsThe response rate to the questionnaire was 81% (n = 260). Missing responses per item varied between <0.5% and 10%. The 37 items were found to be two-dimensional, and 19 were deleted based on conceptual reasoning and Rasch model analysis. One dimension measured communication and trust (nine items, reliability 0.87) while the other measured collaboration in care (nine items, reliability 0.91). Items successfully operationalized a quantitative continuum from lower to higher degrees of participation, and were found to generally fit well with the Rasch model requirements, without disordered thresholds or differential item functioning. Total scores could be calculated based on the bifactor subscale structure (reliability 0.92). Older people (≥ 65 years) reported a higher degree of communication and trust and bifactor total scores than younger people (p < 0.05 in both cases). People with a specific contact person experienced a higher degree of participation in the two subscales and the bifactor total score (p < 0.05 in all three instances).
conclusionPsychometric properties revealed satisfactory support for use, in nursing home settings, of the self-reported Next of Kin Participation in Care questionnaire, with a bifactor structure. Additional research is needed to evaluate the effectiveness of the scales' abilities to identify changes after intervention.
trial registrationThe KUPA project has Clinical Trials number NCT02708498.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.