Evidence map›Paper›PMID 32002786›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2020

Health-related quality of life among transgender and gender expansive youth at a rural gender wellness clinic.

Jane O'Bryan, Melissa Scribani, Kimberly Leon, Nancy Tallman, Christopher Wolf-Gould, Carolyn Wolf-Gould, Anne Gadomski

Abstract read
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In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Pediatric Gender Care in Primary Care Settings in West Virginia: Provider Knowledge, Attitudes, and Educational Experiences.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2024
    Article
  7. It's time for change: inequities and determinants of health-related quality of life among gender and sexually diverse young people in Australia.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024
    Article
  8. Article
  9. Article
  10. Trans*Forming Access and Care in Rural Areas: A Community-Engaged Approach.International journal of environmental research and public health · 2021
    Article
  11. Article
  12. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Jane O'BryanDepartment of Obstetrics, Gynecology and Reproductive Sciences, Yale School of Medicine, 310 Cedar Street, FMB 215, New Haven, CT, 06511, USA. jane.obryan@yale.edu.ORCID http://orcid.org/0000-0003-2909-8200
Melissa ScribaniBassett Research Institute, Bassett Medical Center, Cooperstown, NY, USA.
Kimberly LeonColumbia-Bassett Program, Vagelos College of Physicians and Surgeons, Columbia University, Cooperstown, NY, USA.
Nancy TallmanBassett Research Institute, Bassett Medical Center, Cooperstown, NY, USA.
Christopher Wolf-GouldThe Gender Wellness Center/Susquehanna Family Practice, A.O. Fox Hospital, Bassett Healthcare Network, Oneonta, NY, USA.
Carolyn Wolf-GouldThe Gender Wellness Center/Susquehanna Family Practice, A.O. Fox Hospital, Bassett Healthcare Network, Oneonta, NY, USA.
Anne GadomskiBassett Research Institute, Bassett Medical Center, Cooperstown, NY, USA.

Funding

Robert Wood Johnson Foundation Clinical Scholars Program N/A
6 · The paper itself

Abstract

purposeTo address a critical gap in the existing Health-Related Quality of Life (HRQOL) literature by quantifying and describing HRQOL among transgender and gender expansive (TG/GE) youth at a rural gender clinic and comparing the HRQOL of these youth to age-stratified United States (U.S.) population standards.

methodsThis cross-sectional study includes results of the baseline HRQOL assessment of 141 TG/GE patients enrolled in the Gender Wellness Center (GWC) Pediatric Patient Registry. HRQOL was assessed using the Child Health Questionnaire-Child Form 87 (CHQ-CF87; ages < 18) and the Short Form-36 (SF-36v2; ages 18-21). Mean subscale scores were compared to the most current U.S. population standards available.

resultsOn all but one of the CHQ-CF87 subscales, TG/GE youth scored significantly lower than 2015-2016 U.S. general population youth and youth with two chronic conditions. On the SF-36v2, TG/GE youth scored significantly higher than 2009 U.S. standards on all physical health domains but lower on all but one of the mental health domains.

conclusionsCross-sectional HRQOL data from a registry of TG/GE youth indicate significantly poorer mental health measures as compared with the U.S. general population. Longitudinal assessments are needed to evaluate whether HRQOL improves with gender-affirming care. Future studies should aim to identify sociocultural factors at the intersection of rurality and health that contribute to diminished HRQOL among rural TG/GE youth.

Indexed as

AdolescentAdultAmbulatory Care FacilitiesAnxietyChildChronic DiseaseCross-Sectional StudiesFemaleHealth Services for Transgender PersonsHumansMaleMental HealthQuality of LifeRural HealthRural PopulationTransgender PersonsAdolescentAnxietyMental healthPediatricQuality of lifeTransgender

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.